tarlovcysts (sacral meningeal cysts)

my own myelogrpahic pictures to describe this health condition.

Category:

Education

Tags:

• Tarlov
• arachnoïd
• sacral
• meningeal
• diverticulum
• médecine

[rcgoze]

"My Immortal" by evanescence

[rcgoze]

Hello

there are now many new findings and awareness since the last year first international meeting for meningeal pathologies and even new approaches...

Where are you from ?

I have them for 20 years, had a failed Tcs surgery, and I am surviving...There is hope!

[rcgoze]

Hello safletsuk

Thank you for your comment...We move on with strength due to each other support and in the will to act for future..

Sincerely

[rcgoze]

Hello Melody...Yes, it is such a battle...but we are fighters..

I have been on very long journey not only through life but also through pain. The only thing that keeps me going is the hope for tomorrow a miracle might happen; A cure. I want to help you and others sufferers and caregivers alike

Thank you soi much for your comment..

As you can read, it has been seen 1869, and only 3 comments...Hope that the othrs were only people curious to knwo what this is...

Love..

[rcgoze]

Thank you very much to understand: it can't be seen on our face, on our body...and as all invisible disabilities, hard to have it recognize, not to complain, but simply because there are so muc we can no more do..

[MrRt57]

What is the name of this song?

[christinebibiche]

merci ma Claude pour cette video il ne nous reste qu'a esperer mais surement plus pour nous pour la generation suivante

[Gaptavo2150]

Sweet Jesus....I was told last week I have a Tarlov Cyst 5.9 centimeters. I went to so many Dr's and all they would say was that the burning on my feet was idiopathic.

I think this must be like some kind of slow death sentence.

How am I going to raise my kids and be a good husband to my wife if I can only be drugged up to hide the pain in the future?

[safletsuk]

Thank you for such a moving and informative presentation. Like Auburnlady1, I too cried all the way through! It is such a debilitating condition with so little help out there. Some days it is hard to fight the battle, but we must continue to move forward, taking strength from each others support

[Auburnlady1]

I have spoke to you many times through Tarlov Talk and when I watched this tonight it just made me cry. I am so tired of doctors not listening to me. And I just hurt for you so much too. This is such a battle and some days it is tough to face that battle. Thanks so much for all the work you do to bring this to the forefront!

Melody