Growing Too Fast...

Elizabeth has a non-specific connective tissue disorder that presents as Ehlers-Danlos Syndrome vs Osteogenesis Imperfecta. She has had several joint dislocations and two fractures from minimal trauma. For more information please click on the links below:

http://www.oif.org
http://www.ednf.org

Song in video is Ready, Set, Don't Go by Billy Ray Cyrus and Miley Cyrus. No copyright intended.

Category:

People & Blogs

Tags:

• non-specific
• connective
• tissue
• disorder
• Ehlers-Danlos
• Syndrome
• Osteogenesis
• Imperfecta
• Hannah
• Montana
• OneTrueMedia

[lanhakari03]

did this gurl die

[nefkbbcb]

No she is alive and well!!! I made the video in hopes of bringing awareness to Ehlers-Danlos Syndrome and Osteogenesis Imperfecta. Also, to show just how fast children grow from infants who need our constant loving attention to teenagers who strive to be independent!

[ILUVHORSES1981]

she is beautiful!

[reidrules45]

it doesn't look like she's growing to fast in the phpto's but that might just be me. I need new glasses.

[MsDemilovato4eva]

awww i luv this song!!! cute baby

[mystisme]

@nefkbbcb i am so happy that she is a live and well give her a kiss from me and tell her not to give up hope, my sister daughter suffer the same things and she s so pressiuos to me today she s 18 and hope she s gonna live a long live with us

[75gldy]

I have osteogenesis Imperfecta, & 1m 15 & broke 20 bones.

[emilyvanesashleymily]

are kaitlyn, frankie and elizabeth your daughters?? children do grow up fast

[lanhakari03]

i wish the best of luck for her

[Elfins]

What a beautiful young lady she is :) I know how difficult her life is and my heart goes out to both her but also you as her mother.