Debra of America: 2010 Patient Care Conference
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Uploaded by Debraamerica on Sep 3, 2010
Footage from the Dystrophic Epidermolysis Bullosa Research Association of America's (Debra of America) 2010 patient Care Conference in Cincinnati, Ohio. The conference was held Jun 16 through 19.
Debra of America is the only national nonprofit dedicated to research and providing supportive services for Epidermolysis Bullosa (EB) patients and their families.
EB is a rare genetic skin disease that occurs in 1 of every 50,000 live births. It causes the skin to be so fragile that the slightest friction can cause severe blistering inside and outside the body. There is no cure for EB and the only treatment is daily wound care, bandaging and pain management.
To learn more about EB visit: www.debra.org or joint the debra family on Facebook.com/debraofamerica.
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Thank you for letting the world know how good we are living and still some dont thank god for living with such a good health. i wish that one day there will be an artificial skin or some cure thanks again very interesting video.
Jaberising 4 months ago
love it!
truesoldier2006 1 year ago