Mastocytosis - What is it?
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Uploader Comments (Ann73102)
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I have had mastocytosis since I was about 5 and now I am 16, I just rash really easy just from walking for more than 10 minutes. I also have spots on my back, chest, and stomach. I really hate the way it looks :/
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Oh my gosh I have this too. I have never met or seen anyone else with it.
I'm glad I'm not the only one!
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I have mastocytosis and it has never bothered me
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@FerchoyMayis I'm real sorry i have it too my mom knows how you feel
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@asapdiva You have to be born with it ! it can't develope or just be caught
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I will I have it and it breaks my family heart
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@asapdiva i have no clue!!
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@LiPgLoSsGaLz Hello Lip Gloss? Were you born with it? and is it systemic or cutaneous?
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So wht are some of th 1st signs? I hav a 3mo old baby and I've notice brown rough spots on her legs and arm.
Thnk u for this awareness video:-)
If I had 1 wish, it would be for all babies n kids to be free of any illness tht prevents them from having a normal life. My prayers go to all wonderful children in th world...God Bless :-)
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i was diagnosed with Mastocytosis when i was an infant, my parents gave me little information about it besides what was allergic to which is a list of many. i do have lesions but they arnt in noticeable places exept for my neck which people mistake as a hicky and judge quickly.i never knew the severity of it until now. I do know however that the doctors at the cleveland clinic in Ohio were going to send me over seas because they have never seen a kid with mastocytosis before i am now 16.
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I'm sorry this video is long but I wanted to include as much information as I could to help educate those who have never heard of it or just don't know how serious this disease is. Thank you all for taking the time to watch and learn. Hopefully by Raising Awareness there will be a cure for this disease one day.
Ann73102 2 years ago