Duchenne Muscular Dystrophy=Show your Support
Uploader Comments (megamomdouble)
All Comments (34)
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Contact me at Mitosynergy@Mitosynergy/dot com
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Great video...i too hope there is a cure soon...thanks for sharing your story and God bless
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@megamomdouble That was so sweet. The only reason I know about this disease is because I had to interview someone for a project and interviewed my teacher who's son has this. It's so sad and you'd never expect that she was working so hard. I have a twin as well and damn, I can't imagine what it's like to have her going through that disease. I pray for your son and will try to help :) and I will pray for others as well. Darn, I'm so glad that his twin is supportive ^_^ i love my twin.
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I have goose bumps after watching that video. My son was diagnosed with DMD last year. He is now 10 years old. He also modifies to the situation and unless I say something or they see his AFOs, and ask...no one would know. He is such an amazing, funny, active little boy. The light of our eyes. I wish there was more we could do for our boys...an answer...
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Wow, what a touching video, we too are trying our hardest to help rare disease researchers find cures for DMD and many other rare diseases. In conjunction with the Children's Rare Disease Network we are giving away a $50,000 rare disease research system to the winner of a video contest and the organization of their choice. You should enter your video. For more info, visit RemedyMD's website and click on the "About" section then look under "Press Releases".
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my son i think has this he has cmt and docs keep saying there is some thing else wrong and i think this is it he cant walk feed him elf run jump or even talk on his bed days
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My eight year old nephew has DMD and its heartbreaking to all of us, but especially to him who has to lose his mobility at such a young age. We all hope and pray for these precious children. I pray that there will be a cure one day...one day. God bless you and your beautiful family.



Thanks,
I am not sure how to enter this but I would certainly do what I can :)
megamomdouble 11 months ago
How does your other son react to his situation?
toryroseiii 11 months ago
@toryroseiii
He actually is very helpfula nd understanding and being a twin i think he automatically has a great bond with him...this is all he's known
megamomdouble 11 months ago