Mixed Connective Tissue Disease and my story

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Uploaded by on Jun 1, 2010

Please watch and feel free to comment, this is a disease I have been living with my whole life.

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Education

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Standard YouTube License

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Uploader Comments (bail9865)

  • I actually have the Reynauds phenomenon too. I take Plaquenil too. Thank you for all of the support and comments.

  • thank you so much to everyone that watched this, I will keep posting and hopefully people will keep watching them too.

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  • thank you so much for posting this. I also have it and wanted you to know that I found a website called "patientslikeme" and met a few other young ladies who have this. Check it out if you wish. Your brave and I can tell, very kind too! Let us know how your doing dear one. Thanks again!

  • I just found out I have this disease yesterday. I'm looking for information from all over.

  • Ummm I'm Ur biggest fan :p

  • My daughter was just diagnosed a few months ago, she is 15. She started having problems at about 11. I have lupus, sharing information like your videp helps people understand something that's not well known. My daughter had 2 surgeries this year on her wrists. You are brave and smart, thank you for your video

  • I am so sorry you have this at such a young age, i have the same thing too but I am much older.

  • You are such a brave, beautiful and intelligent young lady. This video is very informative. You did a great job!

    Hope you are well.

  • Hi Mia. Thank you for your informative presentation. I live in Seattle with my wife of 41 years. We have helped a number of people with auto-immune conditions such as you are experiencing.  If you would like some information, simply respond to this comment. I would be happy to talk with you or your parent to discuss my thoughts on your condition.

  • Great job, as usual! I'm so lucky to have you for a daughter. Love, Mom

  • God bless you sweets, I live with this disease also and it's no fun. Keep your positive attitude and hang in there. I will add you to my prayers.

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