The inspiration behind my fundraising is a very special friend of mine who i met at hospital who also has a brain tumour. When i started my campaign at the beginning of July, he was very sick and by making bracelets was the only way i knew i could help and do something positive. Sadly my special friend Robert Harley passed away on Saturday 1st August 2009 whilst i was on my way too visit him and give him a teddy too look over him. I love Robert and am very sad i could not make a difference in time. However me and my family are more determined too rasie awareness, so they will hopefully one day come up with a cure for brain tumours and help others like me and Robert. I wish i had started making my bracelets sooner as i was looking forward to spenidng more time with robert as i grew up. His partner, Trina, said that Robert was very proud of me and my bracelet idea and now everything i do will be in memory of Robert.
I was diagnosed with a brain tumour in 2007. After lots of tests scans and biopsies doctors revealed my tumour was too deep with in the brain to be surgically removed and there for my only chance was 18 months of chemo. At first this was given 3 days per week at Birmingham Childrens Hospital via a line which was put into my chest.
After 4 weeks or so of chemo my became very weak, lost my hair, lost weight, and became very pale and tired. I was constantly in hospital for days on end as I had no immune system.
During many of my hospital stays whist doing there rounds the doctors noticed my vision seemed worse and arranged for an MR scan. By this time my chemo had made me so weak my body couldnt cope and the dosage was lowered but unfortunately my scan revealed my tumour had grown and therefore chemo failed.
With surgery still not an option I underwent 6 weeks of radiotheropy at the Q.E hospital every day monday to friday. Although not many visible side effects I became very tired and I had a sore scalp where I had burn marks from the radiotheropy.
Since then my tumour has remained the same size, but my eye sight is still deteriorating. I has MRI scans and eye tests every 3 months.
Im well in myself at the moment, and mom says we live for now. I do know thatmy treatment means that i have got lots of things too face in the future.
My mom says 'as a mother you never expect one of your babies to be diagnosed with cancer, and when it does part of you dies. As a parent you are there to love and protect your children. you fix and make things better but I cant. I cant protect him, fix him, or make him better. All I can do is be there for him through every treatment, struggle a different path for which he faces alot of. If I could give Harry a wish it would be to give him normality back. He knows if it were an option I would swop heads with him to give him the chances in life every child deserves.
Even though he is only 9 he is beautiful, courageous, and seen more in life unfortunately than most of us. He is my absolute inspiration to keep going and retain as much of a normal life as posible we live for now, and when we have bad news we just get on and deal with it.
thanks charl x
JaCkD2K8 2 years ago