Flash Mob CCSVI Melbourne

Our presentation was simple to communicate the struggle people with Multiple Sclerosis have to obtain testing and treatment for Chronic Cerebrospinal Venous Insufficiency (CCSVI). Our presentation highlights the blockages we encounter when trying to access treatment. At a high level, these include the dependence of Neurologists on Pharmaceutical treatments for MS, lack of funding directed towards non drug-based therapies (represented by the giant purse), and medical politics (red tape) as hospitals withhold treatment from people with MS after misguidance from neurologists. The presentation ends with a sense of hope which is represented by the blue balloon.

Please join www.facebook.com/CCSVI-AUSTRALIA

Category:

Nonprofits & Activism

Tags:

• Multiple
• Sclerosis
• MS
• CCSVI
• Vein
• Angioplasty
• Flash
• Mob
• Melbourne
• Bourke
• Street
• Balloon
• Australia

[NJSMKMMS]

Well done folks. Good to see you out there spreading the word. I had no idea this is happening to people in our own country. We should have choice in health care not just what big pharma stuffs down our throats.

[kezzcass]

@NJSMKMMS Thanks :) This was a year ago and we are still pushing on to get this recognised. Everyone should have access to accurate information and the freedom to choose between treatments. When information is withheld (such as risks of pharmaceuticals) or info of other non drug treatments we cannot make the best decisions for our future health. It's complicated... but we have to advocate for ourselves and cast a critical eye on what we are prescribed. Thanks for your comment. Kerri

[kezzcass]

@NJSMKMMS Yes, we had a segment about 12 hours ago. Hope you caught it. :)

[sharpyangel]

Congratulations to all of you guys and girls who took part in this FLASH MOB.

Thank you to you all for getting this out there in the public domain for all of us with MS.

Keep up the good work and i will do what i can from my end.

Merry Christmas and a Very Happy New Year to all :-) x x x

[kezzcass]

@sharpyangel Thank you - how's things in Perth going? Have a great Christmas :o)

[LouLou3078]

Hi Kerri, Great Flash Mob. Did it make the Melbourne Papers or media. I hope so. :)... Saw you dancing. Are you walking without your cane now?? Kindest Regards, Lou

[kezzcass]

@LouLou3078 Hi Lou, we had a journo and photographer (freelancer) so hoping to see it and the broader story coming out as a feature health article in a major paper. (not sure if I'm meant to tell everyone that!) No cane for me - I don't think anyone watching me would notice that I walk differently, I only have a vague stiffness in my step now.

[ThePennygirl]

@vbeachy

Maybe you should leave your (Tysabri Advocate) comments on your back door! If your Neuro is for CCSVI ? Then WHY? VERN... not get this treatment for yourself?

Don't throw backwash ! your (patient advocate) comments! on a good pointed video that brings hope! To those of us that failed all the CRAB drugs! we have no choices! WHAT THE HELL WHERE IS YOUR COMPASSION????

[Doviedove]

Wonderful to see such a turn out. Love the message.. we all know it works and we all know how unfair it is not to receive this treatment when so many others are treated for similar conditions.

[NJSMKMMS]

Hi Kezzcass, Have all of you heard about the international CCSVI conference that starts Monday 21st Australian Time. Have not worked out the exact time yet. It runs over a couple of days and has Zamboni (sp) himself speaking