Bad Episode

This is when it's REALLY bad. This video is pretty disturbing!

Category:

Education

Tags:

• dystonia
• twict
• shakeyamy
• pkd
• pnkd
• movement
• disorder
• neurological
• dysphonia

[ShakeyAmy]

The episodes before the baclofen pump could go for hours and were very painful. I would lay in the fetal position on the floor while my body seemed to do crunches and not stop moving. now with the pump they are smaller "attacks" and less frequent or as severe.

[dnt124]

i'm crying rihgt now because it looks like you're in pain and i can't do anythign to help. i will keep you in my prayers

[mav1234560]

It's called awareness and also takes a lot of courage. You have the option whether or not to watch videos on here. It is interesting that you chose not only to watch it, but to then attack the person courageous enough to post it. This is clearly beyond your understanding and maybe before watching a video, next time you should read the poster's comments.

[dpacfureal]

You are a beautiful person. The tears in my eyes are for you.

[o10139kea]

This is heart breaking. As a medical student, watching this video really motivates me to study harder and be even more empathetic towards my future patients. I hope to set up free clinical visiting hours on weekends for those who cannot even afford the medications necessary for treatment or a simple check up. I really hope your doing better and these episodes are not so aggressive. Thank you for sharing Amy.

[1216saab]

you poor thing! So wish I could help!

[m0th3rrussia]

you are a amazing person to spread awareness, so brave, urgency for relief of symptoms of this have been on my mind always from the first time i seen this two years ago, its why i want to be a bio chemist, i love you!

[schlaznger]

poor lady

[rainman211]

I'm so sorry for you. I'm so sorry. It seems as though there is nothing that your friends can do. I'm so sorry. How have you been lately? I will pray for you. 

[museofink]

is Dystonia a neurological disorder or a hereditary disorder? I'm sorry you had to suffer like this, is there any way to lessen the cramping of your muscles or is it something you just have to grin and bear?

[J0hnnyev1L]

You are very strong to post, I admire your spirit. Much love to you and I hope that your episodes only continue to get smaller and easier to deal with. You are awesome :)

[hamaramadarat]

I'm really sorry about you. Nobody diserves this, so where is God now?

[darkgreenranger]

How hard is it to breath when something similar to this severity occurs?