These were great ideas! My daughter has developmental delay and her specialists think her DNA test indicated mito. Her symptoms are very much like your son's--bends at the waist due to fatigue. Has good days/bad days. She is almost 3 and can't walk yet and her speech is very limited. She takes 4 supplements at this point. She starts preschool this fall, and these ideas will help us. I hope you post some more things! Please feel free to contact me here if you would like. ~Jennifer
Hello I live in the uk my name is alan .I have got a mitochondrial myopathy with complex v deficiency ?recent my health seem,s to be getting worse.I have lots of muscle spasms every day .I am going to Oxford John Radcliffe hospital for rare mitochondrial disorders .but as you are aware diagnosis is a long process just wondering if you have any information on mitochondrial myopathies with complex v deficiencies as hard to get information? And what mitochondrial disease is associated with compl
Thanks for making this video. I am in my last year of preparing for teaching. I will remember this and try to incorporate your information into my class.
This is a great introduction video for teachers in general. I only wish, I could of had a better school experience, when I was this young. Nobody understood my illness, and I often felt alone. I had an aid, for the academic aspect, but had no emotional guidance.
These were great ideas! My daughter has developmental delay and her specialists think her DNA test indicated mito. Her symptoms are very much like your son's--bends at the waist due to fatigue. Has good days/bad days. She is almost 3 and can't walk yet and her speech is very limited. She takes 4 supplements at this point. She starts preschool this fall, and these ideas will help us. I hope you post some more things! Please feel free to contact me here if you would like. ~Jennifer
teachermomjv1 1 year ago
Hello I live in the uk my name is alan .I have got a mitochondrial myopathy with complex v deficiency ?recent my health seem,s to be getting worse.I have lots of muscle spasms every day .I am going to Oxford John Radcliffe hospital for rare mitochondrial disorders .but as you are aware diagnosis is a long process just wondering if you have any information on mitochondrial myopathies with complex v deficiencies as hard to get information? And what mitochondrial disease is associated with compl
SCHOOLOFROCK776358 1 year ago
Great video!
SalTaylor01 1 year ago
Thanks for making this video. I am in my last year of preparing for teaching. I will remember this and try to incorporate your information into my class.
lady4law 2 years ago
i think this is perfect explination
ecuabeba2004 2 years ago
This is a great introduction video for teachers in general. I only wish, I could of had a better school experience, when I was this young. Nobody understood my illness, and I often felt alone. I had an aid, for the academic aspect, but had no emotional guidance.
May your son have a much smoother ride.
TheBlackberrybeat13 2 years ago