Living life with Mitochondrial Disease
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Uploaded by pawoods40 on Apr 2, 2008
This is about the life of a child living with Mitochondrial Disease. He has this disease, but this disease doesn't have him, it doesn't capture his spirit and who he is!
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My 9 y/o son was just diagnosed with MELAS. I cried my eyes out watching this, and can easily relate to it. I wish for a cure for all of our mito kids. Stay strong Colin! Your family will be in our prayers. Thank you for sharing this beautiful video.
gumfamily7 8 months ago
which disorder does he have 2 of my children passed away frommitochondrial disorder complex 3 deficiency blind seizures no movement of their bodies,feeding ttubes traches and now after their passing i find HBOT is practically a cure brings them out of this comatose state awakens the body and revitalizes them with energy
meeknsweet127 1 year ago
He has the right spirit with such a disease. He's doing what he can, with the life he has, and I am too. We can't let it run our lives.
TheBlackberrybeat13 2 years ago
my daughter kaylee has mito, and I know its been rough for us so far since we got our final opinion in april, I pray that she is just as strong and smiling through the years like your son.
momofthree26 3 years ago
This is beautiful. I wish for colyn that all his dreams come true. My two sons Joe and Jack have Mitochondrial Disease. Just like Colyn they fight every day. Never , Never Give up!
twowiseguysmom 3 years ago
What a great video. Thanks so much for sharing and bringing awareness to Mitochondrial Disease!
nicolejeansw 3 years ago
Wow....I love this video.....and I was so happy to see that you included his ABILITIES, and not just his disability.......Looks like Colyn is whipping mito's but at the best of times.....
Colyn 1
Mito 0
Life life to the fullest Colyn.........
branbradmeg 3 years ago