Rebekah, 25 months with full trisomy 18.
Rebekah is in Otto Bock Kimba pediatric wheelchair and is playing with a Vtech Learn and Dance Interactive Zoo. This is a great toy for babies and for our special delayed kids who need a little help with fine motor skills! You can find a description of it here: http://www.vtechkids.com/product.cfm/Learn_Dance_Interactive_Zoo/605/
Most kids with trisomy 18 do have significant delays, Rebekah included. However, she is most definitely progressing along a 'normal' developmental path, it is just very slow. :-) She can operate the monkey, spin the spinner, press the toucan, and press the buttons on top. Of course, she didn't demonstrate this all on the video. In fact, she shows her very 2 year old attitude by ignoring Daddy's request to press the buttons. But watch her long enough, and you'll see she understood Daddy quite fine. She just needed to wait until it was 'her idea' to do it. :-) We highly recommend this toy for our trisomy friends!
Trisomy 18 is a condition where there is an extra 18th chromosome. The medical community considers trisomy 18 (Edward's Syndrome) and trisomy 13 (Patau's Syndrome) to be incompatible with life. But doctors don't know everything, and as parents fight for these kids, more and more of them are surviving and thriving. While Rebekah is clearly very delayed, she is most definitely compatible with life, love, and joy! We will never regret giving her the best life we possibly can.
You can read more about Rebekah at http://buddzoo.blogspot.com.
Become her fan on facebook: http://www.facebook.com/rebekah.budd.
Subscribe to 'buddzoo' on youtube to see more videos of Rebekah!
For more information about LIVING trisomy kids, please visit the following websites:
www.trisomyadvocacygroup.org
www.trisomy.org
www.hopefortrisomy.org
www.noahsneverendingrainbow.org
Expecting a trisomy 18/13 child?
We have many support groups on facebook! Check out: Trisomy 18 Mommies, Trisomy 18/13 Journey, Faces of Trisomy, Support Organization for Trisomy (SOFT)
Choose Life:
www.prenatalpartnersforlife.org
www.benotafraid.net
This one won't play for me:( She is doing so great though!!!
Yodawg810 7 months ago
i miss u r
rhaney2 7 months ago
She is amazing!! God bless her!
my4lilrugratz 8 months ago
sooooo awesome!
rhaney2 8 months ago
Corbin loves that toy we have one of those
klacsmom 8 months ago