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Published on Dec 3, 2013
Krystal, from Davenport, Iowa, was born with neonatal Marfan syndrome, a genetic disorder affecting the body's connective tissue. Connective tissue is found everywhere in the body and acts a "glue" that helps support organs, blood vessels, bones, joints, and muscles. For those with Marfan syndrome, this "glue" is weaker than normal and it can lead to serious complications including heart problems.
Krystal has been in and out of the hospital for her entire life. Although she has been hospitalized since September 2012 waiting for a heart transplant, Krystal never complains and lives each day with hope and love. Meet Krystal at www.uichildrens.org/2013-Krystal.