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Uploaded by on Feb 2, 2009

Steven Johnson Syndrome

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News & Politics

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Standard YouTube License

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Uploader Comments (spunkyrachel)

  • What happened?

  • hello, what happened was i had a adverse reaction to ibuprofen. i lost 85%-90% of my skin, and other major complications. the condition is called steven johnson syndrome.

  • I can really understand being "pissed off" I felt that way toward skinny people LOL...I was afraid I was going to be very bitchy toward thin people after I lost my weight, but it didn't turn out that way. I had a small bout of depression at the Millennium(end of the world LOL) and was on Prozac for 12 weeks. I worship the person who invented that stuff it was great. my daughter was on Lexapro for a short bout also it gave her some muscle ticks she was low on magnesium and that fixed it.

  • hi rose! i must say you look great!! thank you for your insight. i have been on meds before for anxiety. i have to agree with you they are great!! i look forward to my appointment with my doctor so he can prescribe something. its bad enough that i don't look normal, but its makes it worse when you don't feel normal. so this is going to be a good thing. take care rose!

  • You have been thru soooo much, I think having these emotions is normal. Getting meds will probably be a good thing at this time for you. I can see the progress your body/skin is making and I hope you can find it in your heart to be kind and patient with yourself. Take care! Oh, and don't forget to change the batteries in your smoke detectors ;) ~ peace

  • LOL!! your funny, thank you for your comment, and I will put new batteries in my smoke detector. : )

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All Comments (14)

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  • @spunkyrachel have you comepletely recovered yet? i hope you have. This disease is something that i trully think you and everyone else (myself included) should never have to deal with again. please feel better and if anything else happens feel free to tell me, i like talking with people to make them feel better.

  • I hope you stay strong and keep faith I had gotten SNJ 2 years ago not as strong as you but enough to change my life forever I now have four skin disotders and in pain most of the time , I do understand by seeing you I felt better that I was no the only one , you have helped me be stronger .

  • You're so special. :) My mother is really suicidal and depressed because she's got some really really horrible and complex and rare medical condition. But I showed her this video and I was all like "You sit around being mopey, but look at her? She's strong. :]" and now she's a lot better.

  • @spunkyrachel Dang :/ that sucks. I think you still look good. you are still the beautiful woman you were before! I have a few questions though. Will your skin color come back? Was there any physical pain while you were expireincing your reaction to the medicine?

  • You are very brave ... hang in there!

  • ibuprofen can do this?!? @spunkyrachel

  • wow...you look a LOT better! good for you!

  • My sister had SJS when she was seven years old. Horrible affliction

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