Tuberous Scelerosis

Thoughts and prayers go out to you Chris, your family, and your little daughter.

Here is how to help and learn more:
http://www.tsalliance.org/

This is Emily:
http://www.youtube.com/watch?v=inf3Vm3M_pE

Category:

People & Blogs

Tags:

• Tuberous
• Scelerosis

[25tsc]

Thanks for the video on Tuberous Scelerosis. I am 25 years old and I have TSC. Not many people that I talk to have ever heard of Tuberous Scelerosis. Thanks again.

[jon4lakers]

25tsc,

Thoughts and prayers are with you.

[jaime21985]

Why do you look so red, your a/c doesn't work?

[jon4lakers]

i had just gotten out of a shower.

[jon4lakers]

Thank you guys for all your kind words and best wishes, little emily needs it!

[Cdrust]

Thank you all for your kind words and 2 jon for your posting a video on the subject .... Jon if you would could you make Emily's video avail to anyone so they can put a face on her

[jon4lakers]

Chris, I just posted a link to her video in the notes section. Feel free to post it as a video response as well. It is my pleasure/honor to do whatever I can to help.

[yoshi2560]

That is great that you care about that poor little girl. I hope that she gets alot better and lives a very happy life.

[ramin987]

Sorry to hear that.

Prayers to the family and especially daughter.

Ramin

[Melo15986]

I have Tuberous Sclerosis and i'm 13 and it's pretty difficult to go out in public without people staring at you and also i'm 2 of 3 children in my family and i'm currently using a cream called serolimus which is clearing up the redness and dots on my face so wish me luck that it's goes away

[paintballobsesed]

my little sister has down Syndrome and shes 11 and has had 4 open heart surgurys and its not the most fun thing to do because now shes afraid of hospitals or more specific hospital beds but her first one was when she was at 7 months and that was really sketchy because of her young age but when she was first born she had 1/2000 chance of living because of her heart

[scottyboi1011]

hey i also have tuberous sclerosis and ive had brain surgery when i was 5 in 1997. hopefully everything will be ok for her

[txkittymeg22]

my sister has TS along with autism and mental retardation. she is 15. thank you for caring

[beerbelly93]

hey...im ben im 19 and i have tuberous Scelerosis, thanks for explaining to people what it is...cheers mate means alot...and i dont know any1 with TS and not very many people know what it is so its good that your explaining what it does mean, so people can understand just a little bit

[TheMightyM94]

u look red, why?

[bened0894]

hey man nice of u to do that hope she egts through op bless her.

[44944494april]

you are nice but you still have not send me a an email back.

[TheCurrentPope]

X2, that and he makes great unwrapping and review videos.

Keep up the great work!