Legal and Ethical Issues in Medical Treatment of Children with Variations of Sex Anatomy

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Published on Jun 3, 2011 by

Speaker: Anne Tamar-Mattis

An estimated 1 in 2,000 babies is born with a Difference of Sex Development (DSD or intersex condition). Currently, there is much controversy regarding the best course of treatment for those children with DSD born with atypical genitals. However, little attention has gone to the process of decision-making, or to other important questions such as sterilization of children with DSD or protecting privacy rights.

This workshop begins with an overview of the biology of DSD and the basic legal and ethical principles of surrogate consent in pediatric cases. We will then discuss some key legal and ethical questions.

Participants will become familiar with key legal and ethical issues in the treatment of children with DSDs, with special attention to unsettled questions of law and uncertain medical outcomes. Participants will deepen their understanding of the ethics and law of surrogate decision-making for children. Participants will be able to identify potential situations in the treatment of children with DSDs where additional legal or ethical consultation may be indicated.

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LICENSE: Creative Commons (Attribution-Noncommercial-No Derivative Works).

For more information about this license, please read: http://creativecommons.org/licenses/by-nc-nd/3.0/.

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  • ty

  • @XXYZGUY1 incomplete nonsense that ends up being published by bigots who seem to get off on sharing there opinions of how I act or behave when I know more then they do as I am not caught up in trying to get a paper out ie published for a carreer. Some of the crap that mentions me is extremely offensive as most issues I have ie behavioral issues they caused with there bigotry and continued lack of care concerning how I feel.

  • @XXYZGUY1 Graeme I contacted AIC several years ago and recieved some advice from them, however concerning lawyers and fist fulls of cash, is that you must have a lawyer who first of all is interested in listening to what I do have and have experienced, that is local, instead of me having to travel out of town just to see if they are interested. Other then that all I have ever really cared about is my complete medical history, and complete facts when they do report me in case study instead of the

  • Really liked this presentation. would of loved to have been present to ask a few questions.

  • great idea with the web using ,to live broadcast and have people be able to ask questions ,live,even though it didnt work

    i totally disagree with DSD the abbreviation and the inclusion of disorder for people who are naturally born intersex!

    i think its insulting to call intersexed people a disorder!

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