A message from Mom Huntington's disease

Mom wanted to tell all 10 of us kids what is going on with her right now herself. She didn't have a chance to do this on the sisters trip with the 8 of us.

Category:

People & Blogs

Tags:

• Huntington's
• disease
• Huntingtons
• Chorea
• HD

[Angeldemorta86]

The bad thing about this Disease is the fact that it runs a Family line, if your mom has it you may get it, its like a 50/50 Chance and so far there is no non cures at the time being

[jlaminar]

@Angeldemorta86

There are a lot more "bad things" about Huntington's then the fact I could have it.

It's not "like" a 50/50 chance, it is a 50/50 chance.

But thanks for coming here with a ... lesson.. ?

[Angeldemorta86]

@jlaminar

The reason i say its like a 50/50 chance is the fact that if your mom has it, then you have a 50/50 chance of having it or not, the reason i know this is cause it runs in my Family and my Grandfather died with this disease. Theres 3 stages you can get hit with it, when your a baby, pre-teen/ teen and adult hood. If you dont have it thats good its something i dont want to find out that i have, its and automatic death sentence in my book, grandfather tried to kill him self on more then

[jlaminar]

@Angeldemorta86

I'm sorry about your grandfather! Does your mom or dad have it?

If they don't, you can't have it. Your chance then is zero.

I have been tested and I don't have it.

It isn't an automatic death sentence (well for us). Mom is 69 now and amazes me everyday with was she can accomplish, she knows no limits. Her motto, "Keep moving".

[lehcarsmada]

I think that your mother is a beautiful and very strong woman. I am in nursing school and I'm doing a presentation on HD, I was curious as to if I might be able to use this video in my presentation. Thank you and God bless

[jlaminar]

No problem you are welcome to use the video. She is very strong and very beatiful. Thanks for your comment.

This was taken a year ago, I wish she was still at that stage.

[corsoluvs]

Your mom has such a wonderful spirit and such a beautiful lady. Hope all is well. Thanks for sharing this video.

[dumonceauxable]

Your Mom is an amazing and beautiful woman. She seems so very mentally sharp and has an inspiring attitude. If her movements were not so marked I would never guess she had HD. Thanks for posting.

[cam794]

you get half your genes from one parent and half from the other, so if you have a parent with HD you have a 50/50 chance of having the gene. if you have the gene you will develop the disease and you children will have a 50/50 chance of having the gene. it is not a recessive gene, if neither of your parents had the gene, you will not either. I have a mother ,4 aunts/uncles and so far three sibling and many cousins passed with this disease.

[Blackduck46]

Mum sounds so positive. She still speaks clearly and I wonder if a 3ml injection of Haliperidol monthly would help her movements. I have and am living through 3 generations of Huntingtons.I nursed my wife until she died at home for more than 12 years (1999) I knew her father who died in an institution when she was 16. I am currently nursing my 41 year old eldest born daughter at home. She is in advanced stages and is bed bound. 3 of my 4 children tested positive. It affects the whole family.

[SideOfLife84]

Easily one of the cruelest diseases out there. My heart goes out to your mother and your family. If she has lived to 69 with this disease, she has conquered more hardships that most people can ever imagine. I have no relative with this disease; and came across it out of pure curiosity and concern. I have grown to empathize with those affected. Keep on keeping on!

[anx1300c]

Her speech is excellent.

[TheUnicorn567]

I really enjoy this video. I am also a nursing student doing a presentation on this disease and I am going to use this video in my presentation because I love how she is strong and willing to share how she feels. God bless her and your family.

[cubano07x]

As a Psychology student this disease intrigued me but the text book definitions and descriptions do NOT do this disease justice. This is a lot worse and more severe than I had originally anticipated! I hope your mom is doing alright and the rest of your family as well!

[Angeldemorta86]

chance