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Fibrous Dysplasia diary

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Uploaded by on Nov 16, 2011

An extremely rushed update as to how I am doing with managing my FD and apologies to those who have emailed me and have asked for more vids.

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  • Hey lady...love your videos. I am about to turn 30 and was diagnosed when I was 21. I had it on my frontal crainal bone. Had two reconstructive surgeries. I try to live my life normally but I feel what you say about being told you have it and left alone to deal with it. I still have lots of problems in my life that I think directly relate to having gone through so much with the disease. Hope to someday make a video of my own for youtube.

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