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Cerebellar Hypoplasia Rehabilitation - Holly's Story

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Uploaded by on Nov 29, 2008

Happy Christmas 2011. Well done on your amazing progress Holly!

This video shows Holly's progress over a two year period while she carried out her exercise program to reduce the symptoms of Cerebellar Hypoplasia.

If you have any difficulties with balance contact us for a free Information Pack.

therapy@sensorylearning.com.au

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Education

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Standard YouTube License

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Uploader Comments (SensoryLearningAus)

  • Increíble, Holly da un testimonio enorme de lo que Dios puede hacer con la ayuda y el cuidado de sus hijos, mi hija padece también de esto, y al ver este video me he llenado de mucha esperanza, gracias Holly, sos un ejemplo para mi, Dios Te Bendiga y a todas las personas que te han ayudado a salir adelante, te saludo desde Honduras en Centro América

  • Thank you (Translation- Incredible, Holly gives a great testimony of what God can do with the help and care for their children, my daughter also suffers from this, and seeing this video I've filled a lot of hope, thanks Holly, you're an example for my God Bless You and all the people who helped you succeed, I greet you from Honduras in Central America)

  • i think i was logged in on someone's account, not mine(?)when i commented on Holly's video. My comment starts with my daughter is 17 now... sorry if this comes up on someone's account.

  • Thanks, Thats ok, I'll put it here; My daughter is 17 now, but these videos of Holly look like our home movies. Tell Holly to keep going! Its a lot of work but really worth it. And to Ian, bravo for working outside of the box!! My daughter and I returned from treking the Incan Trail to Machu Picchu a few months ago. She decided she would do something impossible. She did and keeps on proving that 'Anything Is Possible.'

  • I have a 7 year old daughter that has recently been diagnosed with Cerebellar Hypoplasia - I am an Occupational Therapist and have been working with her since she was 3 months old - she also receives OT, PT, and ST at her school...our progress is slow and I would love to know more about the treatment methods involved - are there any DVDs available for purchase...are there any courses offered in the US...would you treat my daughter if we came to Australia...please help - we are desperate!!

  • Hi and thank you for your email as well, I am in the process of writing a reply and look forward to helping where I am able.

Top Comments

  • Wow! Amazing story, and great job Holly!

  • Stories like this provide us with hope ...well done holly...i bet you'll run a marathon someday!!!

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All Comments (44)

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  • Great job to Holly and everyone who helped her improve!

  • Hi There Tiffany, yes I have seen bladder control issues, I will email you to discuss further. I have observed that some circumstances that the automated control of some component of bladder bowel function appears to have a Cerebellar component. Also In 2010 there was a study by Zago et al called: “Cerebellar pathology and micturitional disorders: anatomotopographic and functional correlations”. This showed a link between the cerebellum and bladder control.

  • my daughter was diagnosed at 2 and now five---jumping running and happy kid! Hard work but kindergarten should be great! ;-)

  • My daughter has unilateral hypoplasia of the cerebellum. She will be 4 this June and still has balance issues. She had strabismus surgery and shortly after began to walk when she was 2. My question is if you have seen delays with bowel and bladder control/ potty training. We have tried all of the traditional methods of training to no avail. So I am wondering if the cerebellum is responsible for muscle control, could this too be affected? We do not see any specialists for this other than a neuro

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