Complications of EDS

I wasn't going to post this, but then changed my mind. Even though it's a little embarrassing and I don't really like people to see how tired or how much this can affect my cognitive abilities, I wanted you all to see what being chronically ill can do to your cognition and how fatigued it can make you. I will make a more coherent and informative video about Fatigue and Postural Orthostatic Tachycardia Syndrome later. I felt it was important to show it.

Category:

People & Blogs

Tags:

• Ehlers-Danlos Syndrome
• EDS
• Disability
• Chronic Illness
• Postural Orthostatic Tachycardia Syndrome
• POTS

[DarkWaterfall]

have you been to the dr about this? I would really suggest it. There's some great information out there that you can bring with you. That's what I did. I brought an article from GeneReviews about Ehlers Danlos and highlighted all the symptoms I had. Hugs. Good luck to you.

[tita14051]

Thank you for posting this video, I go trough this every day, I know how you feel. You are a very good speaker

[tita14051]

Thank you for posting this video, I go trough this every day, I know how you feel

[libbydeland]

Wow I was diagnosed with it when I was born. My mom pinched my and said...."yep she got it". It Is a lot of times genetic.... I thought it was genetic in till I saw some of these comments about people being diagnosed with when the were near their teens and twenties. I just do know if it's possible to be diagnosed with it the late

[222Maisie]

So sorry for your many symptoms, but thank you for sqeezing out the energy to make the video. I don't know if it is any comfort, naw, it couldn't be, but I am 59 years-old and was diagnosed just a few weeks ago. I spent the past 20 years suffering and having docotors, P.Ts., and others think it was all in my head. Sometimes the only thing in my head was the Fog

[dyepretty]

Thanks for your posts! You are lovely. <3

I've got EDS, and have many of the same issues.

I also always had issues with digestion, and going gluten free has really helped that ,and brain fog. In fact I think clearly for the first time in m life!

I recommend that everyone get indigestible "foods" out of their lives like gluten and cow dairy, but especially those of us with EDS since our sensitivities are so much greater.

[wingsofbeauty09]

I have Elhers danlos syndrome vascular. But i know how you feel my hips and everything dislocate also..

[irishcatholicgirlie]

My shoulder, hip, and ankle dislocate

[irishcatholicgirlie]

I have uctd, Sjogren's, fibromyalgia, and POTS. My dr also said I basically fall just short of the diagnostic criteria for EDS, though my joints dislocate all the time cause I'm hypermobile and my skin is super soft (though it does not stretch beyond the normal range).

[AHAHemo]

hi...i also have eds too...n ur very pretty :>

[queueless]

I can only imagine how exhausting it must be, but I just have to say that, despite it all, you're still an extremely articulate speaker, with way more moxie than most. Hang in there!