This is a journey that can lead you down a confusing and uncertain path. Through it us Mitto patients must turn to the world we live in, not in anger, but hope. Hope we can hold onto, driving us to show the public our stories. Through awareness like this the world will accept, and acknowledge our truths, and the multiple obstacles we face.
You have truly been an inspiration to our family, your family was always so wonderful and supportive, We will miss reading your posts on caringbridge... Rest in Peace....
heyy its me again, i just found out i have numerous problems with my mitochondrial disease. I have MELAS complex III and just had surgery for my centeral line last month... i can relate to you completely.
I was wondering if anything special has helped you along the way.
Brittany also does not know what disease she has or that it is fatal, maybe you can help me and my family deal with this, with your past experiences. Oh I am only 16 and she is only 14 and i can not imagine what this is for you or her, and i know how much strength it takes to put on a smile my family has been through alot of close deaths and also horrible diseases, i would like to talk to you if you wouldn't mind.
This is a journey that can lead you down a confusing and uncertain path. Through it us Mitto patients must turn to the world we live in, not in anger, but hope. Hope we can hold onto, driving us to show the public our stories. Through awareness like this the world will accept, and acknowledge our truths, and the multiple obstacles we face.
TheBlackberrybeat13 2 years ago
Amanda,
You have truly been an inspiration to our family, your family was always so wonderful and supportive, We will miss reading your posts on caringbridge... Rest in Peace....
branbradmeg 3 years ago
I love you, my SuperManda!!
southernspirit324 3 years ago
WOW . i had 2 girls who HAD MITO>THEY WERE BRAVE LIKE YOU> AYEZA AND PARYSA >
LOADS OF LUCK TO U AND NEVER LOOSE HOPE :)
lotusfaisal 3 years ago
heyy its me again, i just found out i have numerous problems with my mitochondrial disease. I have MELAS complex III and just had surgery for my centeral line last month... i can relate to you completely.
anthonyriehle11 3 years ago
Great video, very informative and with heart!
804bluffview 4 years ago
I was wondering if anything special has helped you along the way.
Brittany also does not know what disease she has or that it is fatal, maybe you can help me and my family deal with this, with your past experiences. Oh I am only 16 and she is only 14 and i can not imagine what this is for you or her, and i know how much strength it takes to put on a smile my family has been through alot of close deaths and also horrible diseases, i would like to talk to you if you wouldn't mind.
BandGeekLuver09 4 years ago
i love your video, I too have mitochondrial disease, I am 16 years old now.
anthonyriehle11 4 years ago