Spina Bifida Awareness
Uploader Comments (mstmimosa)
All Comments (40)
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I'm doing a project for my Special Ed. class. I've got the facts, but the change in perspective was honestly very helpful. Thank you so much for posting!
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This is hilarious! I dont know whether to light these things on fire or give them a bone
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I have a friend whose niece has spina bifida and she's about 7-8 yrs old and she's the sweetest person anyone could ever know the other day she was at a penny sale and i was there and she said the darndest thing! i asked her is she knew about carrie underwood and she said no and i said she was married now, and she asked me "who'd she marry" and i replied mike frisher of the ottawa sens and she said "Why'd she marry that fool" i laughed histerically!
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Wow!
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My daughter just turned 3 in march, and she has Spina Bifida. Like yourself I was unaware of this until I had a child with it. Im glad to see another parent trying to make a difference. Thanks
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my daughter has spina bifida, she is my little miracle.
she never had to be shunted which im grateful for ..and along with all the other things that go along with the condition, so far she seems to have avoided which is amazing since her opening was so bad.
so far her only problems are, curled toes,bowed legs just a bit, and a bowel issue.
i would not trade her for the world...but the pain i deal with on a daily basis.
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i have spina bifida and im 15. i walk normally and have a shunt. my shunt has never been renewed, that is very rare. i got surgery at two hrs old
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I have Spina Bifida also (16 years old)
I walk like normal with no limp
I can walk,run,swim and do just about everything a normal person can.
My Doctor said I'm his only patient who has the mildest case!
People don't even know I have it unless I tell them.
I am very thankful I'm very mild and not severe!
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im 14 i hve spina bifida too and hydrosephulus worst case w a hunt currently un parylized



doctor told me spina bifida is caused by not eating enough green vegetables while pregnant, aka folic acid.doctors also say that while he is healthy && his spine is in better conditions then most, when ur born with this or u develope it u are only expected to live until ur early adult yrs.my boyfriend is 23, we have a child on the way and the thought of i dont want him to miss that.somebody help me =( i feel like im on that movie final destination.
lee4llee 3 years ago
I am not sure who in your life has Spina Bifida... But you should contact your doctor, Do your own research, talk to nurses... Get more informed... In old times people were told they would not live long, But I have a Cousin with Spina Bifida who is perfectly happy and healthy and she is entering her 50's... Get more informed and don't take one doctors word and consider it gospel... Check around do research you would be amazed...
mstmimosa 3 years ago
Most times I find my own best information on lifespan and quality of life are given by the parents or the individuals with Spina Bifida... It should not be considered doctors advice, but it will give you a better footing to understand what most go through and what is expected, because these people live it...
mstmimosa 3 years ago
*says nothing, wipes a tear and gives a standing ovation*
THANK YOU SO MUCH for this video!!!!! I hope and pray Jaeden's Spina Bifida is as little of an issue as possible. He looks like a wonderful vibrant young boy, and I applaud both you and him for never giving up.
KiernanKate 3 years ago
Thank you so much hun, It means so much to know that someone is moved by our simple message.... THANK YOU!!! Keep an eye out, we are going to do a follow up video real soon on Jaeden and how he is doing... Honestly, Thank you, when you and people like you comment, I know that our message is getting out there! *now you got me crying* (laugh) thank you hun!
mstmimosa 3 years ago