Impact of Gastroparesis on my life
Uploader Comments (thexandershow)
All Comments (50)
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@eliegmm hope they found your diagnosis by now.. but I had the same symptoms as you and a gi dr did an emptying scan but on my gallbladder. I had no stones but with the emptying scan it turns out your gallbladder empties the bile... should be at 100% but once you fall below 60 something then it needs to come out. My test showed my emptying was at 4%! I had my gallbladder removed and things got better but 1 year later I developed gastroparesis! its a hard test to have approved by ins.
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These pics speak a thousand words. I have lost 80 lbs, and people don't recognize me anymore. I am trying to raise awareness, myself. Hold on to hope, and of course, your son.
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hi i was diagnosed with gastroparesis abought 4 years ag i have bean taking reglan but im thinking its not woking is well as it was i get theis weard burps that smell like rotin eggs and its so grose i think the food just sits in my stomick for to long and that wat happens i doent know what to ask my doctor to do abought geting me a new perscrition ant try that to see if that help thanks for the video it was way good.
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I am viewing these videos... I have all the symptoms short of vomiting which I used to do years ago. Now I just think I don't want to so I take a stomach calmer from Shaklee. I see my doctor on Monday after my CT Scan this past Wednesday. I sure hope it is something easy like Gallstones. They found some but all the pain is on my left side so my insurance wont let me get it taken out. The pain is unbearable and getting worse monthly. I'm 52 and deciding that I'm done eating.
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When you had your gastric emptying study what was the percentage of food emptied after 4 hours...I was diagnosed and I have no symptoms at all...only because i was at 85% emptied after 4 hours and normal is 95-100. I did have severe heartburn but I stopped drinking Diet Coke and I seldom have it now.
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Thanks for the information that you have shared..My boyfriend has been diagnosed with this and true point that support is very very important and I am studying and learning about this chronnic disease hourly so i will be more knowledge and know how to handle the good and the bad days that we are about to face ahead.... His WLS is dropping incredible fast and having trouble keeping food down..He is not at the point of a feeding tube..HEARTFELT
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Thank you for sharing your story. I have had gastroparesis for about 3 years now. I was diagnosed with fibromyalgia in Feb of 2000. I was also diagnosed with Interstitial cystitis (inflamation of the bladder wall). I have a few other illnesses. They all are stemmed from fibromyalgia. About three years ago my IC to a break with meds and I have had no more problems with that so far. That is a very painful disease. I am now trying to go on the gastroparesis diet. I am praying it works.
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@thexandershow I had commented on here before about having gp for over 10 years,and I had asked you about social security well I would like you to know that after a very long battle I was approved.I had to get a lawyer and see a judge but he agreed with my lawyer.I was in the hospital for 6 days and the day before I had my hearing I was released:).also I wanted to let every gper know that cannabis really helps me with my constant nausea and makes it possible for me to eat and not feel so sick!
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oh wow.
thanks for this video, THANK YOU SO MUCH!!!
so informative! I've been feeling crappy for a few months now and it's just getting worse and worse. Today my PCP called me and told me he spoke to my specialist and they're almost positive I have Gastroparesis. So yea, this video is the first real breakdown on this disease for me.
God bless you!!!!! <3 STAY positive! I'll subscribe.
oh and SIDENOTE; I was born with a condition called Cori's Disease.. I've had my first feeding tubes..
Shiiit, very informative vid. I get nauseous when I eat (not large amounts, normal amounts) and once got sick from eating too much haha but I've only recently been like that and I think im getting better. Thank god I dont have it and I really sympathize for u because I thought I did, and there was no cure
But more importantly... is that a penguin in that office??
ImTheKobold 1 year ago
@ImTheKobold haha, yep it is. I really hated the nausia and vomiting the most. Now it's just about watching what I eat. Now I have been feeling hypoglycemic, probably because I don't eat fruits/veggies or meat, haha! I am glad you are feeling better.
thexandershow 1 year ago
God bless you dear, thank you for being so brave as to share yourself and condition with all of us here. May Jesus heal you and restore you completely according to His Will. I do have a question, you manage through diet and medication - what is your diet like? how do you prepare your foods and what can you tolerate? I blend all my food and can only tolerate certain foods... was wondering, just curious, what you do and can tolerate? I also receive nutrient IV therapy which really helps me.
MyOwnStickFigure 1 year ago
@MyOwnStickFigure Hi! I was about a week away from a feeding tube when I made this video. I did not have to go down that path just yet, because I have been pretty stable. I eat cheese (low fat), bread, crackers, applesauce, pudding/jello, milk, yogurt, potatoes, rice and pasta. I also enjoy some soy/veggie products, like morningstar farms bacon/sausage and veggie burgers. I have to be careful with some of those because they can contain ingredients I can't digest.
thexandershow 1 year ago
i feel for you ive had idiopathic gastroparesis for ten years, i had a neurostimulator fitted 7 years ago and everything wasgoing fine but even thats having problems now. im on the verge of losing my job and this illness isnt a reconised disability in the uk. Hope all goes well for you.
mrlordsnooty 1 year ago
@mrlordsnooty Hi! Sorry about your job. Honestly I think being away from my job has helped me a lot. I would get stressed out from missing work when I was sick, then I would be sicker from being stressed out and miss more work and the cycle continues. I have heard a lot of suggestions, like finding consulting work, or working from home if possible. I could see how that would/could be difficult, on bad days.
thexandershow 1 year ago