Baby has seizures, but misdiagnosed as Colic or Reflux

We took our baby to the pediatrician and a special "Colic Clinic" to determine what was wrong with him for the first 8 weeks of his life. Unfortunately, he never displayed any "episodes" while visiting doctors. So it wasn't really the fault of our doctors that he was misdiagnosed. We filmed our baby out of desperation and finally got some attention. Before this video received any comments, we had already gone to the emergency room. It was determined that he was having multiple different types of seizures all at once (no signs of "classic seizures"). After an MRI, we received the diagnosis that he has hemimegalencaphaly. It's a rare malformation of the brain that causes seizures.

Although he didn't display this intense episode all along, it finally got to this point after 6 or 7 weeks. If your baby "jack-knifes" or rolls his eyes back, please take him/her to a neurologist or the ER. Our doctors asked all along if he turned blue, but he never did. Just because your baby doesn't turn blue, doesn't mean he's not having seizures (if he's showing these other signs).

Thank you to all the concerned folks who sent us comments. We hope this video will be helpful to others in our situation.

Category:

Education

Tags:

• Reflux
• Seizure
• Baby
• Colic
• Misdiagnosis
• hemimegalencephaly

[msdelle22]

please tell me he is doing better this heart breaking 

[Mekolino1987]

how he is now ? ;(((

[sahus100]

Bless him, hope he is better now.

[rolllme71]

does the child eat well are there special needs of care during the day?

[ilovemybby8017]

oh my fing god that breaks my heart...poor baby thats so sad :(

[angelofdeath8588]

omg poor baby.Just seeing him that way broke my heart.I hope he is better

[amandaog69]

Lady do you know what poisons are in those vaccines. Would you inject your baby with mercury????

[christynjohn09]

i cant even finish watching this makes me so sad...my 2 week old so does the same movement with his eyes this worries me...

[quac4718]

@amandaog69: No Pediatrician in their right mind would recommend NOT getting any vaccines done. What is your Pediatrician's name?

[FreeSpirit000000]

@amandaog69

I agree with you, there is a huge risk involved. I was advised by my son's pediatrician to not have any vaccines done,