Myasthenia Gravis

Feature speaker is Dr. Robert Pascuzzi, Chair of National Medical Scientific Board on Myasthenia Gravis

Category:

News & Politics

Tags:

• Myasthenia
• Gravis
• Pascuzzi
• MG
• muscle

[InnaVitamina777]

Dr Puscuzzi approved me for my thymectomy when i was in the worst shape of my life..i had no prednisone treatment and has mestinon for the first time 24 hours prior to the sirgery..i seen Robert Pascuzzi onces in the morning and was told to come back at 5 to see any "results". i was so weak, i had to be rolled in with a wheelchair. could not speak well, had total diplapia and total body weakness and he still approved me...needless to say i went into crisis and spend 2 months on the ICU..bad call

[adam15ND]

@TheMarkNessMonster I feel you about the "crappy doctors".. My mom has been in and out of every hospital around the area, some of them told her it was a stroke, and then her throat closed off so we told the doctors it MIGHT be an allergic reaction to medicine and they were just like "Yep you must be right" then they sent her home. She got worse until she finally collapsed. Now she's intebated at hospital #4 and we get the results back tomorrow that will tell us if it's Myasthenia Gravis.

[TheMarkNessMonster]

My father is currently in the hospital being treated for what started out as an MG breathing crisis 3 months ago.  He's been in the hospital since, making frequent trips to ICU, coded twice, and has been intebated 3 times. He's in ICU right now(10-18-10)for a week, and isn't a victim of his MG, but is a victim of crappy doctors. We are trapped at Lourdes Hospital and we cannot afford to send him to somewhere competent like Ochsner in NOLA. The doctors tending to him now are killing him. Help.

[sreafuel]

This was good to hear. And it is true what the Dr said. I have been diagnosed for about 3 and a half years and there was a time that my symptom (double vision) went away, and to this day it is only in my eyes, praise the lord for this informaiton

[UTAOUB]

Thanks for ur modest, informative talk. I've had MG since I was 4, & learnt a lot. PLEASE look N2, & ask other MDs 2 look N2, the drug MYTELASE. It's expensive, but makes me strong. Also (in danger of) bcoming extinct Bcaus not 2 many peopl use it. But it's long lasting & very good. Also...Mestinon BROMIDE gives me much mucus. They used to hav Mestinon CHLORIDE....much better. Pleas ask that it be made again. Thanks 4 infomativ video, & gracious delivery!

[UTAOUB]

@thekaneguy I've had MG since I was 4, (unusual-- but tru!) I find when I hav enuf energy 2 excercise...I feel a LOT better afterward. (My doctor says excercise s THE best thing 4 any1!) Thers no cure 4 MG...but some lucky peopl hav remissions, (never me...I think I haven't excercised enuf.) I tak an older drug called MYTELASE..very expensiv, but it lasts! Almost normal on it. But I think it ma Bcom extinct soon! But if mor peopl tak it, mayb it won't. Please ask an older Dr. about it. Thanx

[kortezez]

I fucking hate MG

[44thcustomer]

I have MG, and am now disabled . I was at the top of my game. Never better. Then one day I started talking like Donald Duck, and choked on tough foods. Wow... this disorder is horrible. I have had all the reccomended treatments. Am somewhat better now. Hopefully I will continue to improve.--poly-oxide solution seemed to do something for my double vision temporally-maybe someone should expand on that- from the Bible "dust to dust"

[gewizz2]

disease sounds bad i know but it just means dis-ease meaning u are [not at ease] so thats why so many things are a desease,

[marisela1727]

I had tymectomy 5 years ago, after that, I feel almost normal, my question is what is better mestinon or imuran ? I feel tired very often.