Life with Cerebral Palsy (Espasticidad)

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ConEspasticidad
July 17, 2009

Transcript of this video: **Visit http://convivirconespastici... Hi my name is Claudia I am 22 and I have CP. I would like to think that I have a lot friends, through college. I am very ambitiou...

Transcript of this video:
**Visit http://convivirconespasticidad.blogsp...

Hi my name is Claudia I am 22 and I have CP. I would like to think that I have a lot friends, through college. I am very ambitious in my work and I have a very active social life. Thats why I am making this video I have a CP but my CP doesnt define me entirely. CP just makes my life more interesting. My CP doesnt hold me back, it makes me a stronger person. This is the first time I have spoken via a video message for Convives con espasticidad The word disability is composed by the word ability and we have the obligation to remember this. Everyday. And we have the oblication to make sure that we educate ourselves, and the rest of society about this fact. We can write our own story. Like everyone else we only need the proper tools and the right information. This is the foundational belief and reason for the creation of the Convives con espasticidad association. Spasticity is a disorder of the central nervous system that increases muscle tone that prevents total or partial movement of the individual and others movements called involuntary spasms. These are characteristics that are shared and present among others disabilities: multiple sclerosis, cerebral palsy, spina bifida, spinal chord injury, dystonia, Amyotrophic Lateral Sclerosis (ALS). Millions of people need information. Information is POWER. The right information at the right moment can change your life, or any life, for that matter. We have a main goal to make it easier to access information for people with disabilities and their caregivers, supporters and other professionals in the medical field. We are establishing a project: Convivir con espasticidad. We are currently building our Web site.
We hope the Web site will provide three things:
•Information as a point of reference about all disabilities.
•A place for people with disabilities, families, caregivers and professionals to meet and share ideas, offer empathy and exchange experiences with one another.
•An informational tool, conscious of the feelings of society.
You will be able to find :
•Information about the disability
•Information about all the existing treatments.
•Medical advice.
•On-line medical advice .
•Resource for all things related to accessibility and standards for accessiblity.
•Other resources and links of interest (we wish to be a hub within the disability community and a relay station for helping you find the information you need).
•Local resources and advocacy that will help change the realities within your community
•Chats, Forums and a Blog.
•An Idea Box where you can give us feedback and suggestions on how to improve the site.
•Information on activities organized by CONVIVES
•And finally, a way to Contact Us.

Specific Contents includes:
A place FOR CHILDREN:
•Games and competitions according to age.
•Travel tips
FOR ADOLESCENTS AND ADULTS:
•Contests
•Information about eLearning and telecommuting.
•Employment opportunities
•Local meetings, weekend activities etcetera
FOR PARENTS :
•Support groups
•Respite activities and programs for parents to revitalization and rejuvination
FOR Medical Professionals and other SPECIALISTS:
•An area to publish opinion articles.
•Access to a professional members area.
•Access and invitation to the annual meeting organized by Convives.

We provide you with the open door it is up to you to walk through it. Our Mission: Convivir con la espasticidad is not owned by anyone, it is owned by all of us. Our dream is to achieve equality for everyone. We hope that we will realize our own futures with arms and eyes open. Anything is possible.

Do you want to be a part of this movement? I welcome you to join us as we explore the world and its possibilities for all people with disabilities.

Thank you.

Category: Nonprofits & Activism

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sawaugust (3 months ago) Show Hide

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I DONT HAVE CP CHEERES!!

ConEspasticidad (3 months ago) Show Hide

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Thanks for your comment Nyisles 87.
Of course we have the same rights and the same obligations also.
We have to enface our challengues in order to achieve an equal situation!
We can´t loose our hopes!!

Thanks a lot warm regards

nyisles87 (3 months ago) Show Hide

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Hi,

This is wonderful and I am privileged to be the first person to be commenting on this video. I certainly hope that I am not the last. I also am 22 and have cerebral palsy. I graduated from university with two degrees, and I still don't have a job. I don't know how much this has to do with my cerebral palsy, but if it does, than it is wrong. You are right! We have the same rights as everyone else and we should be held on a level field. We have the rights to the same opportunities!

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Life with Cerebral Palsy (Espasticidad)

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