Complex Case Management Severe Autism
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All Comments (73)
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@Bakmoon voz no saves si el de niño se golpeaba...o como fue su vida de niño...
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@glueyourfingers It would be my pleasure. Better than living like that.
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@eastender86 Actually he's NOT being tortured, he's being treated very well. And actions that look like self-abuse to us (hitting his head, etc) are actually ways to get sensory stimulation because many people with autism are hyposensitive. I wish someone would put you out of your suffering.
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@glueyourfingers It doesn't take a medical professional to see that he is suffering. Torture is never justifiable.
I just believe that people have got a right to live a life without constant suffering. If you were brain damaged, had your arms tied down and were constantly watched 24/7 and forcefed would you want to live. I don't think so!
To not be able to tell people you're suffering makes it even worse. Frances Inglis did it to her son and too right!
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@eastender86 Oh really now? What research have you done on autism then? What's your degree in? Where did you go to medical school? What qualifies you at all to talk about why a person exhibits behaviours like Jamie's?
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You are so amazing. All children deserve a parent like you.
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How old is he now
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This is pure 100% cruelty!! The reason he self harms and spits his food out is because he doesn't want to live! Put him out of his misery and end his life now!
I cannot bear seeing torture and suffering like this!!!!
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Trace fluid in pelvis:
"Possibly indicates an early PID pelvic inflammatory disease. Normally there shouldn't be any free fluid in pelvis. Confirmation is needed by other tests"
I just googled and found this. I bet you did too. ;
You mention on the video that Jamie sometimes suffers from UTI's from catheterization. Do the hospitals ever offer to use an external catheter? Or an adult diaper? That would be safer I think.
Bakmoon 5 months ago
@Bakmoon I just had an argument with ER doctor over NOT using straight cath...he kept saying, "so you don't want us to check his urine?" And I was like NO, that is NOT what I'm saying, I'm saying use a condom cath to avoid introducing infection or triggering self abuse. He finally did the condom cath...everything's a fight. It's exhausting.
kgaccount 5 months ago
@Bakmoon We've made a point of always insisting if they are going to do urine tests to use a condom cath, NOT a straight cath....the idea of putting a catheter up a severely autistic persons's private part, when you know this patient is prone to SIB, is just nuts. You'd think I wouldn't have to tell the nurse or doctor this.
kgaccount 3 months ago
Sorry start reading from the bottome of my posts up.. Had to make it a dtring. Also just wanted to add My son is the most loving good hearted son I could ever ask for. He knows Im helping him and that makes it al worth it...
Im a few years behind you but I hope I can learn from you it may help my son. Thanks and god bless...
bruce0813 6 months ago
@bruce0813 Thank you. I hope all is well with your precious son. You sound like a great and loving parent!
kgaccount 6 months ago
You had mentioned around 5:49 you said he was presenting as a moderate discomfort. How can you tell?
MeaganWolf18 9 months ago
@MeaganWolf18 We can tell he's in discomfort if many acute positive behavioral interventions fail and he begins to present with facial grimmaces illuminating pain or if his self abuse can't be re-directed. Another tell tale sign of physical discomfort would be if we put in him water ie..bath , hot tub or pool, and he STILL self abuses. Mainly, because WATER is 99% a place he does NOT self abuse, so if he's self abusing in water, as in taking shower, etc..we KNOW its' PAIN
kgaccount 9 months ago