This is a short video of the 9th Annual Dinner Gala, Dance & Silent Auction event - In memory of Luke Daniel Liegghio (May 5, 1977 - June 10, 2005). Part I.
A fundraising program supporting research and finding a cure - dedicated to all of the children and families coping with Niemann-Pick Type C and other genetic diseases.
Visit Life For Luke Foundation: http://www.lifeforluke.com/
Niemann-Pick diseases are genetic diseases which are classified in a subgroup of LSDs called sphingolipidoses or lipid storage disorders in which harmful quantities of fatty substances, or lipids, accumulate in the spleen, liver, lungs, bone marrow, and brain. Niemann-Pick Type C strikes an estimated 1:150,000 people.
There is no known cure for Niemann Pick Type C; The Lysosomal Storage Research Group of Dr. Joe T.R. Clarke is contributing towards the work in finding a treatment to this disease.
For more info about our group please visit our website http://www.lysosomalstorageresearch.ca/
Link to this comment:
All Comments (1)