Sometimes EDS makes you Exhausted...
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Uploader Comments (jkweirich)
All Comments (8)
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I know exactly how you feel. I'm 18 with EDS (Classical Type)
We just get so tired.
I have super low blood pressure too..
Stay strong girly!
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I can feel your pain, my wife gets upset with me for not wanting to go shower on my days off.
Yet I am 52 with EDS and the breadwinner for our family, most days I would prefer to die than to keep plugging away with the pain and all the meds they are having me take.
I am glad your husband has some understanding for you.
I know it is hard to accept having something like this, I always had held out hope that one day they would be able to fix my pain, and then to find out there is no cure.. sigh.
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You're so strong!
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I'll pray for you. You are so courageous for your videos and I know what you mean about "caring less about getting dressed" because of the pain. I feel you----and am in the same boat. Chronic pain in many areas of the body. Good luck!
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Hey there, May be we can find out where the next EDS support group meeting is and we can go together. I wrote u a few notes through the e-mail thing on here. We should get together, and share stories, I have the eds Type 4 and yea, it sucks. I left u my phone numbers on the e-mails, Hope to talk with you very soon, Hang in there!!! -----Nick-----
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I know that sucks...I have EDS and POTS as well...just keep breathing in and out!
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that sounds rough. Sorry to hear about the effects of the medicines.
Sending you my best wishes. Don't know if youre religious, but I'm going to say a prayer for you now.
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Thank you for your support! It means a lot!
jkweirich 2 years ago