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Stories from Mothers Living with Lupus

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Uploaded by on Jan 19, 2010

Two mothers with lupus discuss their fears of dying from complications of lupus and leaving their children behind in the care of others.

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  • I can totally emphathize with these moms. I am 38 but was diagnosed with lupus 12 years ago and have been on Methotrexate for 8 years now and my docs says there is no other med for me to try. We need newer and better treatments. Hopefully in my lifetime.

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  • yeah i just found out 5 months ago my 9 year old daughter has lupus i'm going crazy that there is no cure i dont understand why is happing she is so little

  • Thanks for great video

  • Not only do I have to worry about when I get sick I now have to worry about a lady that for what ever reason, she cant stand the fact that I have Lupus! She is my personal sociopath and follows me around the Internet. Just like this comment, I can tell from the routes she takes when she views... I see her searches like Lisa Gaines & Lupus. Is she going to target my baby like this if my baby gets Lupus? I am getting a protective order from state because she is just to weird in her target of me

  • Get another Rheumatologist there are other drugs, cellcept,

    remicaide there are clinical trials you can get in. Go to a teaching hosptal that's he best place to get cutting edge treatment Do 't give up Get into a group of lupus patient's network with others, read about lupus, Lupus book by Daniel Walace is wonderful. Good luck

  • I have been there crawling up stairs losing function in my upper and lower limbs and havin to go through rehab to gain mobility with this Lupus It is unpredictable but I am determined to live

  • Hi #UN#

    I have lupus and I have a vlog/show called F.I.T.U.M.I. It would be great if you could take a look some time and leave a comment. I enjoyed your video.

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