27yr old ME patient (onset age 7) needs clinical drug trials to start an adult life.

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Uploaded by on May 12, 2011

A child receiving no medical help for a severely debilitating neuroimmune disease, is inevitably going to grow into an adult with no money, friends, education, opportunity or employment and remain trapped indoors for life.

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  • Thank you, Rachel, for this moving testimony! I wish my best friends we're middle aged doctors either! I hope CDC and NIH stop persecuting us and start trying to address this pandemic so that children don't have to go through this torture anymore.

  • I hope that this disease becomes a thing of the past! 

  • Heart felt, a childhood lost,, let's have no more xx

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