Linda I had a roommate with M.E/CFS in 2009 and he was forced to take heavy anti-psychotic drugs against his will as he was sectioned. The psychiatrists were horrendous as to what they were doing to him they were making him worse not better. It is Mark here and I have mild M.E and have had it for 1 year 1 month now as I was given a medication that I also had to take which made me throw up for 3 months and destroyed my immune system etc thus giving me M.E and I can't do anything about it now.
I love this vid. Yes, we cannot take to the streets. We can take to our computers. We can gather together, and build from the grassroots up, instead of the top down...until those with the energy can fight for us to the top level. I wrote two organizations in canada, neither wrote back. Charles Shepherd got back to me fast though. In Ottawa, we had a Race Weekend, and I don't think a single dollar went to ME/CFS. That's what I want to change..how it's raised and who it goes to.
I think that what the movement needs is more opposition from doctors and other members of public service professions to oppose the psychiatric paradigm of ME, similar to the downing street petition only for medical professionals and such. There are quite a few of those people out there whose input could be quite weighty.
The psychiatric lobby will paint lobbying as denial of the true 'state' of ME, as appears to be its
nature. Proponents of the psychiatric paradigm will use and paint lobbying by sufferers as just another attempt to deny their true state - on the other hand, real opposition from members of their own professions will send a very strong signal.
I don't mean to sound cynical, but the psychiatric paradigm of ME has its own way of applying dismissive circular logic to these things.
too many people diagnosed with ME/CFS have no idea what the illness is. They have no burning pains, exacerbated by illness.
They are the ones who recover, and are welll enough to run these local groups. They never had ME, thats why exercise, diet and relaxation worked for them. Thats why serious is an abstrat mythical term for them.
Linda I had a roommate with M.E/CFS in 2009 and he was forced to take heavy anti-psychotic drugs against his will as he was sectioned. The psychiatrists were horrendous as to what they were doing to him they were making him worse not better. It is Mark here and I have mild M.E and have had it for 1 year 1 month now as I was given a medication that I also had to take which made me throw up for 3 months and destroyed my immune system etc thus giving me M.E and I can't do anything about it now.
835283 1 year ago
I love this vid. Yes, we cannot take to the streets. We can take to our computers. We can gather together, and build from the grassroots up, instead of the top down...until those with the energy can fight for us to the top level. I wrote two organizations in canada, neither wrote back. Charles Shepherd got back to me fast though. In Ottawa, we had a Race Weekend, and I don't think a single dollar went to ME/CFS. That's what I want to change..how it's raised and who it goes to.
killandra23 2 years ago
Simply brilliant, well done Greg.
ejectionfraction 3 years ago
I think that what the movement needs is more opposition from doctors and other members of public service professions to oppose the psychiatric paradigm of ME, similar to the downing street petition only for medical professionals and such. There are quite a few of those people out there whose input could be quite weighty.
The psychiatric lobby will paint lobbying as denial of the true 'state' of ME, as appears to be its
mesufferer 3 years ago
nature. Proponents of the psychiatric paradigm will use and paint lobbying by sufferers as just another attempt to deny their true state - on the other hand, real opposition from members of their own professions will send a very strong signal.
I don't mean to sound cynical, but the psychiatric paradigm of ME has its own way of applying dismissive circular logic to these things.
Great vid :)
mesufferer 3 years ago
too many people diagnosed with ME/CFS have no idea what the illness is. They have no burning pains, exacerbated by illness.
They are the ones who recover, and are welll enough to run these local groups. They never had ME, thats why exercise, diet and relaxation worked for them. Thats why serious is an abstrat mythical term for them.
temperance123 3 years ago
Your local ME Support Group? that's rather an abstract concept isn't it?
patrick3235 3 years ago
Hi Greg
Out of interest, what local group was this? I think people should be aware of the attitudes of this group towards severe ME.
Alex
Alexsk1 3 years ago
I'm going to get out there and spread the word as much as possible about the suffering of people with M.E. and Lyme.
RaiseCFSawareness 3 years ago 2
"Abstract concept?" Wtf??? That group clearly isn't working in the best interest of patients. They need their @sses kicked.
neelubird 3 years ago