Interstitial Cystitis - The Smith Institute for Urology

i wish!! i stll keep gettin misdiagnosed everything.. one year its ic. another its overactive bladder.. and they still dont know

Dr Moldwin was one of my Professors during my fellowship training at LIJ he is marvelous. We just published a clinical review on IC/PBS in BMJ August 8, 2009. I trust his judgement implicitly. If you are in NYC or the surrounding Metro area he is the physician to see.

Angela,
I have heard that when men get IC/PBS it tends to be worse. I'm sorry your husband has it. I know from my own experience with it that it is AWFUL-- BEYOND AWFUL when you can't find the right treatment, are in a flare, or insurance won't cover PT for pelvic floor spasms.

C,
And I've heard when guys have it, it's much worse. Bad disease.

Someone who has not been unfortunate enough to be stricken with Interstitial Cystitis/Painful Bladder Syndrome has no idea what the pain is like during a flare.....it ruins lives, takes careers, and destroys relationship. There are treatments, but it's a real trial and error process to get to effective treatment--even with care from an expert doctor.

as bothersome as IC is, if you are pain free, you need to agressively treat the symptoms. I was pain free for 7 yrs. & then one day the pain started (7 yrs. ago), & my life became a living hell on earth. I lost my job and now just try to make it thru each day. I wish that more attention was given to this disease. I have the hunner's ulcers and it is a miserable disease.

i hear you, i was telling my mom, if it was just in my head i wouldnt be having this discomfort.

I have a flare up about once every few months, and they're debilitating (having one right now, unfortunately). I'm going to make a same day appointment tomorrow, or visit urgency care, because the pain I experience during urination and from pelvic floor spasms is just maddening. I wanted to post my symptoms, in solidarity with those who experience the pain acutely as I do.

I WISH! with all my hearth that some day we can go on with our lifes without IC some dont get much of this but people that its experiencing this painful listyle know, is nasty , im looking for friends that can share advices and comments on this.