Self-Management - Laurence Moon Bardet Biedl Syndrome

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Uploaded by on Apr 22, 2011

Allan Clark shares his story of raising two sons with Bardet Biedl Syndrome, a condition that affects 1 in between 70-100,000 people.

www.geneticalliance.org.uk

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Education

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  • My friend has Laurence moon he had a great childhood apart from dietary issues and short sighted ness it wasn't until he hit puberty his sight got worse and he starred using a cane. He's always had the renal problems and used to get hormone injections. He's 35 now and is in a wheelchair cause his legs a sore it's a condition called ataxia.

    He now lives in sheltered housing in Glasgow

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