Stevens Johnson Syndrome
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Uploader Comments (spunkyrachel)
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All Comments (9)
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I'm glad your hair's grown back & that you've found out what caused your Stephens-Johnson Syndrome. I'm grateful that you put this post up so people can learn about this condition. I'm glad you're getting good medical care. I wish you all the best for the future.
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You look way better Rachel ... Beautiful and I am now aware
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just watched your first video, what a change! shocked to hear about this. makes me be more aware of taking unnecessary medicine like panadol for headache when i should try having more water first. I hope you and the community all get better soon and its great you have found a support group, much love, god bless
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Proud of you sis, This movement for education is definately moving!
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Stevens Johnson Syndromeby spunkyrachel45,751 views- 0:13
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Stevens Johnson Syndromeby spunkyrachel1,373 views
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To Shawnyby spunkyrachel373 views
Thank you so much for this video Rachel. I understand what you went through with SJS/TENS, I too am a survivor, I've had it 3 times now and they cannot figure out what's causing it (they suspect a virus rather than drugs weirdly) I wasn't diagnosed with SJS till 2 weeks after presenting and was in a very sorry state by then. I'm left with multiple organ damage but am happy to be alive. Thank you again for this video, it's fantastic to see people spreading the word about SJS/TENS! :) <3
Annalisaed 5 months ago
@Annalisaed Thank you sweetie!!! I wish you a healthy and happy future. There is a great support group on facebook if your ever interested..It's the best out there if I should say so myself.. : )) let me know if your interested in joining and I will be more than happy to add you.
spunkyrachel 5 months ago
Hey Rachel, great job..Just was wondering how I missed your video..I remember you saying you had a interview or something. Love and hugs to my fellow survivor!
SJSsurvivor 10 months ago
@SJSsurvivor Thanks Becki!!! Hugs back to you!
spunkyrachel 10 months ago