Children Fighting Opsoclonus-Myoclonus Syndrome & Neuroblastoma

What Is OMS?
Opsoclonus Myoclonus Syndrome is an extremely rare auto-immune disorder that affects as few as 80 children a year in the United States. It is caused by a neuroblastoma, a cancerous tumor, or a virus. It is thought that antibodies in the immune system designed to fight off the tumor (or virus) end up attacking the brain as well.
The symptoms of OMS are frightening. A young child who is growing and developing normally suddenly begins to shake uncontrollably and has severe muscle and eye jerks. This soon leads to the inability to walk, talk, sit or even hold their head up. If not treated properly, OMS leads to severe behavioral problems and learning disabilities as well. The disease is not fatal, but children with OMS suffer from permanent brain damage.
There is no cure for OMS. Several treatments, including chemotherapy, are used in an attempt to induce a neurological remission. Unfortunately, relapses are common. The immune system can be activated as medicines are withdrawn, or if the child comes down with a cold or fever. The attack on the brain continues with each relapse.

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[tarawoodman30]

yes my little boy is in this video

[tarawoodman30]

You asked how you could contact me I am on Facebook under Tara Woodman

[gdogw2]

Hi, I would love to share our story and add my son to the video if possible. It was so touching to watch. Great Job. I posted it to my facebook page for awareness. How can I get in touch with you? Thank you.

[tarawoodman30]

@gdogw2

I am on facebook under Tara Woodman in pa you could look me up that way

[TheZekeiscool]

im zeke and I'm the boy on the quad I'm 11 years old now still in remission

[DocSolomon]

@1997natisha u blame MMR... im sorry but that's just wrong

[1997natisha]

my daughter is dealing with oms. i blame the MMR. she had the jab at 13 months and at 18 months she started to get the same symptoms but no tuma, to meny test for her little body to cope with but she had no choice , after 6 months we had a diaognoies and she was put on steroids untill she was 8. i live in london and have never met a perant going thro the same heatake, this is ablessing seeing this on you tube and i would love to talk to some who know wot i have been thru with my little angel,

[1997natisha]

my daughter is dealing with oms. i blame the MMR. she had the jab at 13 months and at 18 months she started to get the same symptoms but no tuma, to meny test for her little body to cope with but she had no choice , after 6 months we had a diaognoies and she was put on steroids untill she was 8. i live in london and have never met a perant going thro the same heatake, this is ablessing seeing this on you tube and i would love to talk to some who know wot i have been thro with my little angel,

[anastasiapopovic]

hi,

very nice.My anastasia (now 7 years old) fighting oms from the 2006.

God bless all thoes children and their parents and give the faith.

[noonoo2345]

just want to say a mahoooosive thanx to u who made this video, it has really helped my friends and family understand my elsie's condition a whole lot more,

my daughter elsie has been fighting oms for a year and half now, she appears in this video,

to all the children out there that are fighting this condition u are all lil angels!!!!

mom of elsie x x x