Kaiden- week one

This is Kaiden during his first week and also includes more info about what led up to Kaiden's birth, etc.

Kaiden was put straight onto CPAP after birth to help him with his breathing but was transfreed onto a ventilator after a little while because he was needing a bit more help.

A few days after Kaiden was born we were taken into a little room by a doctor where he told us what was wrong with Kaiden. We were told he had an enlarged liver and spleen, 2 bleeds within his brain which had caused calcifications, jaundice, extremely low platelets (his platelet count was 9000, a normal babies is between 150 000 and 200 000) and low birth weight. He told us that Kaiden had Congenital Cytomegalovirus and rattled off a list of complications Kaiden would likely end up with- Cerebal Palsy, Autism, Mental Retardation, Blindness, Developmental Delay and Deafness.

I went home to Google it and what i found made the tears stream down my face uncontrolably... I saw pictures of children who couldnt walk, talk, eat, stand, sit, crawl, etc. I was devastated, how could this happen to me? I had been so careful throughout my entire pregnancy. It just didnt seem fair that this could happen to me when i had been so "good" during pregnancy and yet there are drug addicts out there who have perfectly normal, healthy babies.

My world fell apart, i started having panic attacks and couldnt sleep very well. I had one day where i just couldnt bring myself to look at Kaiden, i was so scared, so disappointe and so devastated. All i could think was that ill never have a "normal" child, he'll never run around and play and he'll be teased his whole life.

I was discharged after 5 days and we had to drive home all alone, leaving Kaiden in the hands of strangers... I did however get my first hold that day though. I remember thinking that he was heavier than id thought he would be... Christian (Kaiden's Dad) wasnt able to hold him because he had a cold.

Category:

People & Blogs

Tags:

• Kaiden
• Bilateral
• Hearing
• Aids
• Congenital
• Cytomegalovirus
• CMV
• Enlarged
• Liver
• Spleen
• Calcifications
• Jaundice
• C-section

[dueaug132007]

Doctors just think that because they went to school for however many years, studied and read however many books, that they know it all. When in actual fact the people whos body/child it is, know it better than any other person ever could. Doctors piss me off- self-riteous pricks.

[sweetpeacegarden]

hes beautiful and a miracle, you did a good job trusting your mind and intuition that something just was not right.

[dueaug132007]

Yeah, he is :) Well, its just like the saying goes "a mother knows best"!!! LOL Doctors may think they know it all but no one knows a womens body better than herself and i had known for WEEKS that something wasnt right but docs just kept telling me he was getting too big to move much or that the placenta was blocking his movements...

[jta4jesus]

You know what? I have watched this several times, and what keeps coming to mind is "a mothers intuition." Sometimes I think that doctors should seriously take more consideration to that. ..some of them seem so high and mighty it's like they brush away the things mummy says. It's maddening.

[dueaug132007]

Oh, it INFURIATES me!!! With everything my sons been through, now i dont take any chances- if i notice something i have it checked, if they try to fob me off i stand my ground. No bloody doctor, i dont care who they are- theyre not going to put my sons life/health at risk. What do they care anyway? They get paid their thousands of dollars dont they? Ive experienced EXCELLENT doctors with my son but ive also experienced bad ones. The good ones ill hav 2 thank evryday of Kaidens life for...

[MrsAmandahBerkowski]

Doctors can be like that a lot. My mom told me when my brother was a newborn he wasnt keeping down the milk and was getting so thin. she new something was wrong. doctors said no hes fine. she said hes not fine look how thin he is, hes skin and bones. they finally checked him and he was having allergies to the formula. so he had to be put on special kind of milk. some doc's wait until last minute to do anything. makes me mad

[dueaug132007]

Argh, DOCTORS! Man, they can be a pain in the ass! They dismiss a lot of things, just think your over-reacting i suppose... But when they saw he wasnt moving, and from that point on- they were great, got him out within bout 2 hrs, saved his life... But they treated us like we didnt kno anything again wen his SECOND hernia cam thru- we KNEW wat it was, they kept tryin to say "its just colic"!!!!!! We are there with them 24/7, they may c them for a 15min check- who do you think knos them better???

[MrsAmandahBerkowski]

im glad he is okay and yes he is definantly a miricle. i wish more doctors would trust a mothers instinct better.

[dueaug132007]

It sure does- even when they were tellin me it was jus placenta in the way or hes gettin too big to move much, I KNEW something wasnt right... I just KNEW somehow. I was very in-tune with the whole pregnancy and i could tell right away. Id see other heavily preg mums rubbin there belly in discomfort and id be thinkin 2 myself "Why isnt my baby doing that?". Im just so thankful hes ok now- we do not belive in "god" but our son is definately a miracle.

[MrsAmandahBerkowski]

kinda proves mommy knows best when something isnt right. God bless ur little one. I hope everything turns out alright