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Parseghian Family Story on 20/20 (part 2)

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Uploaded by on Nov 10, 2008

20/20 interview segment regarding the parseghian family story.

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Nonprofits & Activism

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Standard YouTube License

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  • To those below that commented earlier about why bring children into the world when you know they have a possibility of having this gene. It's most likely that the family did not get a diagnosis until after all the kids were already born. Like they said in the first part of the video, their peditrician diagnosed the first son with something like a "clumsy stage." It's so rare that it's not often checked and takes awhile before the correct diagnosis is done.

  • @Fooshiya: I agree one hundred percent. As has been oft quoted, 'Once is a mistake. Twice is stupid.'

  • why bring more children into the world when you know theres a possibilty

  • Thank you so much for posting this. It is heartbreaking but I learned so much about this disease.

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