To those below that commented earlier about why bring children into the world when you know they have a possibility of having this gene. It's most likely that the family did not get a diagnosis until after all the kids were already born. Like they said in the first part of the video, their peditrician diagnosed the first son with something like a "clumsy stage." It's so rare that it's not often checked and takes awhile before the correct diagnosis is done.
To those below that commented earlier about why bring children into the world when you know they have a possibility of having this gene. It's most likely that the family did not get a diagnosis until after all the kids were already born. Like they said in the first part of the video, their peditrician diagnosed the first son with something like a "clumsy stage." It's so rare that it's not often checked and takes awhile before the correct diagnosis is done.
snomor 9 months ago
@Fooshiya: I agree one hundred percent. As has been oft quoted, 'Once is a mistake. Twice is stupid.'
eglantinelass 9 months ago
why bring more children into the world when you know theres a possibilty
Fooshiya 11 months ago
Thank you so much for posting this. It is heartbreaking but I learned so much about this disease.
aliciaanne 1 year ago