Life with Lupus (Part 3)

Four women share their experiences of life with Systemic Lupus Erythematosus at Lupus LA's 2009 Orange Ball. Learn more at www.LupusLA.org

In this video: Amanda and Debbi Cowan

Category:

Nonprofits & Activism

Tags:

• lupus
• sle
• autoimmune
• lupus la
• orange ball
• los angeles
• health
• charity

[Marksbaby4life]

Ive had lupus and I suffer with all the symptoms im 25 had it since 09

[huska86]

now im ok no pain...im no longer tired, i sleep like 7 hours a day and i feel great..this last 3 years i feel like before i was diagnosed with SLE...just be optimistic...smile and know that a better day will come sooner or later...it has to bee that way...and know that ...God knows why HE had choosen u....because ur strong and u can survive this...and because of that u will become a better person...i love u all my lupus brothers and sisters....:)))))))))))just dont lose faith

[huska86]

just wanna give hope to all lupus patients...i was diagnosed with lupus 5 years ago...am 24 years old now...it was horrible....it attack allmost every part of my body...organs...i gane 40 kilos because of the drugs they gave to me...i had chemiotherapy firs every month then every 3 month and then 6 month for 2 years...i lost my hear i was in extreme pain...allways feeling tired..but now ..

[asalinas4life]

have you heard about Transfer Factors? I will beg for you to search about it.

[kacklebird2]

I hope and pray that you're doing well.

[PaisleyPlace]

@LALupusLady I could definitely use some of that balance and most of all understanding over here. DH nor my MIL fully understand the hardships of fighting lupus. I'm trying to keep the stress off him so he doesn't have another heart attack esp when the next one can kill him but I can't keep going the way I am or I will be killing myself as the flares have been nearly non-stop since he became ill. He doesn't understand the fatigue or the brain fog or the rest esp the pain.

[PaisleyPlace]

@LALupusLady I just hope they find a cure before it's too late. I've managed to survive long enough to get one child into college and close to graduation (spring 2011); now I have a 13yo who is in the 8th grade this year. I still have to survive to get her out of high school and into college then through graduation. All this comes on top of caring for a husband who suffered 2 heart attacks, a stroke, & a quad bypass tho' no disability 4 him yet even w/attys. It's my SSDI alone & it's not enough

[ionsis]

Cheers on your courage and strength to choose Medical Profession for Lupus.. bravo! :) keep it up. (another lupie)

[PETEYSOFINE]

Ring Ring..."Pietra you were supposed to make it to your appointment, where are you? Flash back to me on my bed, hair in a knock for weeks, unable to move due to pain & fatigue,walk to the toilet 10ft from my bed or see the view of the ocean from my room. In walks my fat English Bulldog, Lazarus(age 10) following in toe is none other than Bubbie-Jones(my 15 yr old son & one of America's greatest future cops) Bubbie says,"momma, don't cry, I love you SO much, you're beautiful!" I grieve for us.

[LALupusLady]

Living with Lupus is a constant puzzle always struggling to find the balance. The Cowan family are inspiring. Thanks to Lupus LA and the Lupus Research Institute for supporting vital research and services.