No more food for me! Life with a GJ-Feeding tube

No description available.

Category:

People & Blogs

Tags:

• Postural
• Orthostatic
• Tachycardia
• syndrome
• dysautonomia
• feeding
• tube
• autonomic
• failure

[familee24]

I was wondering if you could chew or swish food/drink around in your mouth just for the taste....maybe not at the table cause naturally you would have to spit it out. or is the risk of swallowing/not swallowing/aspirating to high? what about chewing gum or things like that? sucking on a jolly rancher? lots of random questions but I would think some of the above would be okay? You are my hero btw! next video you make should have more moments with you smiling because you are beautiful girl!

[AmazingGrace160]

@familee24 Imagine you are a smoker, you smoke several times a day but have decided to quite because you just found out it is greatly putting your life in danger b/c of an illness you had just been diagnosed with. Does the smoker quite more easily because he knows his health is in danger or what are his chances of stopping if he just had maybe one or two a day? I do chew gum a lot and now that its been closer to two years being around family meals are easier. :)

[AmazingGrace160]

Thanks for the compliment :) And sorry this is going to have to be posted in two comments. For the first 2 months of not eating I did chew on different foods and spit it out but I was just so frustrated by it. It was hard to explain why to my family and the easiest way I could explain it to them was this:

[LuckyLewis15]

If you don't mind me asking what do you do while in school?

[AmazingGrace160]

@LuckyLewis15 I am still connected to my feeding tube, still do my medications through it there. Life must go on.

[chrishasaclue]

@AmazingGrace160 I still think your fucking sexy!!! ;)

[Mrsbutterfly0123]

my brother only had one and my  sister had two but all there live they going to have surgy but my sister is fine she run and play and talk and my brother is behine i hope you get better your friends

[Mrsbutterfly0123]

do you get out of your feeding tub when you get better they tell my brother that he will get better and he will be better when we dont know but they are doing test on him so they could see why  he dont eat he alawys throwing up still with the feeding tub still the gave him a new mesds so he could get better and he also have surgy all there life

[Mrsbutterfly0123]

hi my name is yamiles.. my lil brother is 1 yrd old and he got an gtube too... and he drink juice by mouth bt no food.. r u allowed to drink juice or anything.. or cn u eat also cuzz like i said my bother cn n tryed to tell him to eat bt he dnt want to yet so me and mom feed him by the gtube. and also its brave of you to put thiz on youtube.. also i hope you cn answer my question or any question bout my lil brother here my e-mail: buttterfly0123@ymail.com

[jdkuti1709]

I feel bad for you hunny, I hope you'll get better soon.

[painlessandstainles1]

I DONT KNOW woops caps sorry but everything about ur face is just perfect ur beatiful and i respect u ALOT for what u live with and admire ur attitude life must go on

[elinalla1]

My dear friend, I am nursing student I watch your videos for past 2 years. I learned so much from you, also your experience helps me to understand what patient going through. I send you my prayers. Wish you the best of luck.

[dionstrezlecki]

do you have a mouth full of silver amalgam fillings dear?