tuberous sclerosis, infantile spasms

this our 18 month old daughter grace having a seizure. she has suffered from epilepsy from birth the seizures are always changing from focal epilepsy to todds paralasis. she suffers with the condition tuberous sclerosis her epilepsy changes from month to month we are running out of different medicines to try her on as none seem to be working. she may need to have brain surgery to remove the tumers in the near future. we take each day as it comes and are very hopeful of her and very grateful to all the doctors and specialists that are doing all they cane to help. it would be great to speak to other families in the same situation

Category:

People & Blogs

Tags:

• Tuberous sclerosis
• Epilepsy
• epileptic
• infantile spasms
• spasms atonic
• myoclonic
• seizures
• west syndrome
• petit mal
• petite mal
• grand mal
• absent
• absent seizure
• focal
• general
• head drop

[shiygirl16]

My daughter has TSC too. She had a bad seizure that reset her to a newborn at 8 yrs old in May 2011. I posted a video about it if u want to check it out. My daughter has 7 different kinds of seizures & 4 tumors in her brain.

[khumphrey79]

I have a daughter now 15 years old. She was diagnosed when she was 2 months old with Tuberous Sclerosis. We just live day by day and help her be as "normal" as we can. Our prayers are with your family. Just continue to be strong. She is beautiful.