Charcot Marie Tooth Disease
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All Comments (29)
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@tickyul I don't know if i did this right so I'll copy them all to this because i think i did it wrong... "yeah for real. I was thinking about it... I think it would be easier to create music for something that someone with CMT wrote, I think it would be way more effective and authentic.... if someone could just write a song about how hard it is without awareness and what a world would be like with awareness...
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@theWALLofDTANG if someone could just write a song about how hard it is without awareness and what a world would be like with awareness
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@theWALLofDTANG i was thinking about it, i think it would be easier to create music for something that someone with CMT wrote, i think it would be way more effective and authentic...
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@tickyul yeah for real
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@theWALLofDTANG Thanks and good luck. I guess everyone has their cross to bear.
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@tickyul wow, how helpful.
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@theWALLofDTANG Go for it, you may make a huge YT hit like "It's Friday"....lol. Even when I talk to a doctor or sometimes a neurologist about my cmt1a, they do not seem to know anything beyond the very basics. Many of them are under the impression that Cmt1a is limited to problems of the arms and legs. I have to try and let them know that this is the MOST COMMON PROBLEM, but in no way does it cover the many things that can be effected with this disease..........they don't seem to believe me.
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@theWALLofDTANG *educating
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@tickyul yep. Maybe I could write a song about CMT or something... It seems like the biggest problem with any medical or mental condition is the layman's unawareness. I wish I knew what a broke music producer could do, I really want to help! This did get a lot of hits compared to my other uploads. I do like to write relaxing soothing songs... maybe a song that sooths cmt listeners while education the layman.
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@theWALLofDTANG Yeah, it is a subject that does not have a lot of publicity. I tell a doctor that I have Cmt and most of them have never heard of it. And a cure will be very hard to come by, a systemic problem like Cmt will probably require a Genetic (stem cells?) solution.
This is hi-larious, theWALLofDTANG! Finally, a video of CMT with a little bit of comedy. I have the disease also and it sucks with the hands coming off and everything. I'm glad not all people with this disease have atrophy in their peripherral comedic nerves. A+++
screwlstew 1 year ago 3
haha fair enough. I remember in Global History we had to do a project on war, so my partners wrote a play about being underground espionage beatniks, and it was so unrelated to anything historically truthful that it's quite a shame it can't be changed.
Anyway, whatever gets awareness works for me :P
Hezett 2 years ago 3