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Dekar, courtesy of NILMDTS (Now I Lay Me Down To Sleep)

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Uploaded by on Sep 12, 2008

Dekar was due to be born on July 1, 2008. At approximately 32 weeks into the pregnancy he was diagnosed with Trisomy 18 and hypo-plastic left heart syndrome. It was unknown whether Dekar would make it to a live birth, but if he did live, he was not expected to live long.
After receiving the call from the doctor, I went off and prayed. I told God that if this was His will, I would accept it. I asked Him for strength to carry out all that was before me. I dedicated myself to carrying Dekar to term, cherishing each moment that I had with him.
During a scheduled c-section, Dekar was born live at 10:46 am on June 27, 2008, and met the eyes of Jesus at 7:10 pm the same day.
A volunteer photographer with Now I Lay Me Down To Sleep (NILMDTS) came to take pictures of Dekar and our family at the hospital. Another volunteer put together the slideshow.
This video celebrates Dekars short life with us.
Read more about our Dekar's story:
www.babydekar.com

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Education

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Standard YouTube License

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All Comments (17)

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  • My son just died of Renal Agenesis about 2 weeks ago :( I feel your pain. I also used NILMDTS . Such beautiful pictures.

  • My daughter died of trisomy 18 too. I was 19 years old. NILMDTS also took portraits for me. I feel your pain and know your loss.

  • what a beautiful boy (;

    i'm only 14 years old but i really want to get a nilmdts photographer some day.

  • I'm awe struck. What a beautiful child! Thank you for sharing him with me.

  • Happy 2nd Heavenly Birthday little boy!

  • thank u for sharing ur beautiful lil boy with us. i love that smallest wingless song reminds me of our angel

  • Stopping by to watch Dekar and your family again. I have never loved someone so much that I did not meet before. Thinking of you all.

    Blessings,

    Christine

  • He is beautiful. Thank you for sharing.

  • what a beautyful baby boy, what a gorgeous angel. sleep well little dekar

  • This is so beautiful - I am trying to be a photographer and I am so inspired by the work of the Foundation - take care x

    Jo

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