"Dear Sec Sebelius, Dear Director Collins" Bedroom Video Campaign (9/7/10)

I hope others with ME/CFS and XMRV join this Bedroom Video Campaign and make their own videos for HHS Secretary Sebelius and NIH Director Collins, then post them on YouTube and email them to Kathleen.Sebelius@HHS.gov and Francis.Collins@NIH.gov

With hope for our future,
Rivka (at) ThatTakesOvaries (dot) org

Category:

Nonprofits & Activism

Tags:

• Sebelius
• CFS
• Chronic
• Fatigue
• Syndrome
• ME
• XMRV
• HHS
• Health
• and
• Human
• Services
• bedroom
• video
• campaign

[knightbrucie]

Go dude, give it to them! You need to get yourself some better backing singers tho, that made me want to throw myself off that bridge! Seriously tho, i wouldn't give this illness to my worst enemy. Get well soon from one m.e. sufferer to another!

[CFSDemo]

@knightbrucie

HEY, that's my family you are talking about. I feel very lucky to have had their support for the 2 decades I have been very very sick! And, I love their singing! Thank you, my family, for your love and support.

[RosaBlueHere]

I love your one woman protest! Love this letter from bed too. You are brave. Thank you.

[jimijamesh]

great video!

[revday13]

I'm in. Your Greek chorus is perfect!

Blessings.

[cfscue1]

So cute!!

[eanestor]

This is sooooo great! It was both educational, serious, clear (with the writing boards) AND funny :-) Although I know all too well what this video will have cost you in terms of suffering the consequences of spending so much energy, I couldn't stop smiling :-) Your family is GREAT to support you in that way! Some didn't like their singing, well ... I DID! But most importantly: your message will hopefully come accross MANY people who don't know anything about our illness

[eanestor]

This is sooooo great! It was both educational, serious, clear (with the writing boards) AND funny :-) Although I know all too well what this video will have cost you in terms of suffering the consequences of spending so much energy, I couldn't stop smiling :-) Your family is GREAT to support you in that way! Some didn't like their singing, well ... I DID! But most importantly: your message will hopefully come accross MANY people who don't know anything about our illness.

[dutchywoof]

That was GREAT! I know it took a lot of effort for you to put this together. I know this for I am a fellow patient. Thanks to you and to your wonderful friends for taking the initiative. I am definitely emailing HHS and NIH.

[kathykolb]

Great Job! Thanks for doing this.

[dragonfly111cute]

thanks! I sure hope this works!