Kelsi's JDM Journey
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Uploaded by sharishobe1 on Feb 7, 2010
Kelsi's journey started when she was 2 years old. We put this video together to show a glimpse of Kelsi's JDM journey. Please consider donating to Kelsi's first giving page. Together we can find a cure.
What is JM?
Juvenile Myositis (JM), including Juvenile Dermatomyositis (JDM), Amyopathic Dermatomyositis (AMD) and Juvenile Polymyositis (JPM), is an autoimmune disease affecting approximately 5,000 children in the United States. Weak muscles and skin rash are the primary symptoms of JDM, while muscle weakness without a rash is the primary symptom of JPM. Children afflicted with AMD, on the other hand, experience the skin rash without the weakened muscles. Even within these three designations, JM affects every child differently. Some children experience a mild form of the disease, while others follow a more severe and potentially more debilitating course. Some of the more onerous secondary symptoms are calcinosis, vasculitic ulcers and contractures.
What is the treatment for JM?
There is no cure for JM yet, but there are treatment options to help manage the symptoms. Early and aggressive treatment is usually the best predictor of a better outcome of this disease.
IV corticosteroids (Solumedrol) are usually the first line of treatment for JM. This is oftentimes coupled with high dose oral Prednisone, another corticosteroid. Since the side effects of corticosteroids can be very troublesome, Methotrexate (a chemotherapy drug when given in higher doses) is usually introduced early to allow for tapering of the corticosteroids.
Other common treatments include Cyclosporine and Intravenous Immunoglobulin (IVIG). Less common treatments, but still used include Cellcept (chemotherapy), Enbrel and Remicade.
What is the prognosis?
It is believed that a third of the children will suffer from JM most of their life, while another third will experience temporary remissions and the other third will experience a permanent remission (no medications, no symptoms).
Thank you for taking the time to watch. - created at http://animoto.com
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Cholestorol medications...Statins...can induce this condition in adults
Gunnarsguns 1 month ago
Omg, Kelsi...I'm gonna cry. :'(
-Kaitlin
TheWhiteChecks 1 year ago
Thanx guys!!! I Love you all!!!
Midnightsun2194 1 year ago
i love you kelsi! love your cousin matt
georgiajos09 1 year ago
I'm Sorry Kelsi I Hope U Get Better! I Love U Soo Much! Ur Friend Tabby, Ps. U Were Soo Cute When U Were Little :)
partytabitha 2 years ago