Genetic Disease, Porphyria (Also known as the Vampire Disease)

Know more about Porphyria, which is also known as the Vampire Disease.

Category:

Education

Tags:

• porphyria
• genetic
• disease
• vampire
• sick
• illness
• health
• cure
• natural

[Medewtysenu]

I have Acute Intermittent Poyphyria. Adjusting my schedule to only be out after sundown has helped, plus keeping all windows in my home covered with heavy light-blocking drapes, wearing sunscreen if I have to go out, dark glasses (for eye protection), wearing a hat, no shorts or short-sleeved shirts and washing my clothes with SunGuard laundry detergent (adds UV protection to clothing). Plus above all else, educating others.

[melomelomah]

@Medewtysenu Although life can be tough, please do stay positive because metal health is also important for you(:

It's okay to be different, the people who really love you won't mind about all these

DON'T LOSE FAITH IN YOURSELF :'D <3

[SauravAppleviper]

My brother Died because of porphyria 24 hours a go he was 19 years old :(

[melomelomah]

@SauravAppleviper I'm so sorry to hear this ):

But I'm sure that he was a great brother and he will always be up there to watch over you :')

Be sure that you're not alone :D <3 x

[ThePorphyrian]

Thank you for giving those of us with porphyria a voice. This disease is so very rare that I feel alone most of the time. It feels good to know that I am not.

[melomelomah]

@ThePorphyrian I hope that this video can gives more people attention to it too! Please do me a favour and share this video out so that more people can know about this :) <3

[32sona]

Besides, I've read stories of people who have lost their loved ones to this disease and I'm terribly sorry for them. It all makes me feel that I have it the easy way. My condolences to anyone who has lost someone, and to all those who're still battling: HANG IN THERE :)

[WrathShroom835]

It was brilliantly writen. So much so that it jerk a few tears from my eyes.

I have been wanting to find out about it for a while now and you gave me all the information I needed.

Thank You.

[IndigoCat17]

Porphyria Is Only Called Vampire Disease Because It Burns Your Skin

But There Is A Real Disease Where You Need To Drink Blood To Maintain

Good Health And You Have Sensitive Skin To Sunlight And Also A Bunch

Of Strange Things Which Makes It Seem Like Not A Disease And They

Are Actually Not Human Though Are Mortal Beings.

[melomelomah]

@TheForgeUndergound You'r not alone! Please know that there will always be people next to you and for you :'D <3

[melomelomah]

@32sona Thankyou so much for your comment, it really gives me tears in the corner of my eyes, I hope that you can live a brilliant life and HANG IN THERE just like you've said, please stay positive, I really think that this will help :') <3

[melomelomah]

@zerdda Thankyou so much (': I hope that you can share this out so that more people can know about this disease! :D

[Medewtysenu]

sunguardsunprotection(dot)com/­index(dot)php can be bought online or in Walmart in Arizona, Florida, Texas and California. about $2 per box, lasts for 20 washings. The also have a facebook page.