Stories about Living with Lupus Kidney Disease

Baakari Wilder is a male with lupus who developed the disease while he was starring in a Broadway musical. Carla Vargas describes how she must undergo periodic chemotherapy treatments to manage the health effects of lupus nephritis.

Category:

Nonprofits & Activism

Tags:

• lupus
• SLE
• living with lupus
• treatments
• lupus research
• coping with lupus
• chemotherapy

[gadionson1]

this is really painful, and very heartbreaking disease.

[yannie0101]

Diagnoses 08 aged 16

on symptoms of joint swelling and pain, mouth ulcers, swollen lymph nodes, sickness, fatigue and muscle pain to the point where I couldn't walk. Put on Pred and anti malarials, doc asks for 24 hour urine sample, comes back bad, pred upped 60mg a day. Face gets huge, get stretch marks, have kidney biopsy, grade 4 lupus nephritis, put on Mycophenolate and pred, takes 6 months to get better. Year later same thing but worse, have to go on cyclo. Worse time of my life. Hair loss.

[tresh4401]

I was diagnosed with SLE in 2007 and my twin sister in 2008 everyday just living with this disease its a struggle the aches and pains not from the disease but from the medications is the worst. These videos of real people also struggling with some of the same symptoms makes you know you are not fighting alone.

[imsweetestkitty]

I was diagnosed with lupus in 2007. It has been one of the worst thing to haPpen to me ever EVER! Unless you have lupus you truly do not understand. I really hate when people compare there aches and pains to my lupus flares. I am glad this video is out there to give an example of what lupus really is.

[MBLupus]

Really good video thanks. I am diagnoised 9 years now with SLE

[bubles0nskye]

I have lupus nephropathy too :( I have a generalized edema and I'm so worried that my kidney function will keep declining to the point of needing dialysis. I just had my second session of pulse cytoxan and I'm under high doses of prednisone + tons of other medications.

[ToiTroutman]

Hi #UN#

I have lupus and I have a vlog/show called F.I.T.U.M.I. It would be great if you could take a look some time and leave a comment. I enjoyed your video.

[WillowDove40]

Thank you for sharing these stories with us. I have lupus too and I can relate to alot of what was shared.

[trvlbuggy]

Thanks for the great show of strength and courage. I also have lupus...i know the feeling that truck hit you, backed over you and is dragging you along behind. Faith and taking control of your own health are wonderful tools.