Our Son born with Congenital Heart Disease, had a difficult start too life, but after 6 major heart operation in his first year of life, he's now doing very well.
i am on my ex's g/f screen nameI'll tell you what it hurts i am 30 yrs old with congenital heart defects.. tof =Tetralogy of Fallot i only had 3 open heart surgery the 1st one was at 3 yrs old the 2nd one was to replace a pulmonary valve at 14 yrs old with a human valve and at 29 1/2 yrs old another pulmonary valve from a cow... my old valve was so bad that the heart surgeon could not believe i still alive or walking with that of a bad of valve i had it was rotten away and hard like steel!!
I have TGA and i know your son is strong. All of us with CHD are. I am 29 and i still see my pediatric cardiologist. If i can give any advice, it is to treat him normally, dont hold him back from the things that you think he may not be able to do. Of course, dont over-do-it but let him experiace things that his friends are. hope all is well with your family
I have TOF and I have had five surgery's. The last being this summer. That is one strong kid you have. I also posted a video of my experience, feel free to check it out. I hope you all are doing well, I wish you all the best of luck :)
What is/are his CHDs? My daughter Adelle was born with HLHS. She passed away 15 days after her entrance into this world. She was a superstar everyday of her life! As I am sure Callum is.
i am on my ex's g/f screen nameI'll tell you what it hurts i am 30 yrs old with congenital heart defects.. tof =Tetralogy of Fallot i only had 3 open heart surgery the 1st one was at 3 yrs old the 2nd one was to replace a pulmonary valve at 14 yrs old with a human valve and at 29 1/2 yrs old another pulmonary valve from a cow... my old valve was so bad that the heart surgeon could not believe i still alive or walking with that of a bad of valve i had it was rotten away and hard like steel!!
MsDolphins1987 1 year ago
a kid is a winner!
heartfellt 1 year ago
I have TGA and i know your son is strong. All of us with CHD are. I am 29 and i still see my pediatric cardiologist. If i can give any advice, it is to treat him normally, dont hold him back from the things that you think he may not be able to do. Of course, dont over-do-it but let him experiace things that his friends are. hope all is well with your family
dunkhunt32 2 years ago
Tuching god bless you
MrShaggyTaylor 2 years ago
gorgeous boy
haveanicedayeveryday 3 years ago
I hope hes getting on ok x x my baby has TGA Pulmonary stenosis and large vsd as had 2 surgerys already and at least 2 more to come, 21 wks now.
dmsjlloyd 3 years ago
I have TOF and I have had five surgery's. The last being this summer. That is one strong kid you have. I also posted a video of my experience, feel free to check it out. I hope you all are doing well, I wish you all the best of luck :)
BERTTANY17 4 years ago
What is/are his CHDs? My daughter Adelle was born with HLHS. She passed away 15 days after her entrance into this world. She was a superstar everyday of her life! As I am sure Callum is.
AddiesMamma 4 years ago