CCSVI: I HAD A DOPPLER SCAN YESTERDAY!

A Melbourne Radiographer is performing extracranial scans of the neck veins for MS patients. I rang yesterday morning to find out exactly what they were doing and was told, we have had a cancellation this afternoon if you would like to come down and have the Doppler scan. Well I didn't have to think too long about that and ironically I was meeting MissAlgernon (Amanda) across the road from there for lunch. I don't travel into town very often (1 hour train ride) so it seemed like it was just 'meant to happen.'

Melbourne Radiology Clinic, 3-6/100 Victoria Parade East Melbourne Phone (03) 9667-1667. Sonographer: Dr Julie Gregg. Cost is $300 for the test but is not claimable on medicare.

Anyway I talk about the initial results and a vague 'where to from here?' It was interesting to hear (and I forget to mention this in the vid) that the scan is done while lying down and sitting up. There was a definite difference in bloodflow between the two positions. When sitting the blood flow is much bettter than when lying down. This has confirmed for me that I definitely should be raising the head end of my matresses slightly and not sleep with a pillow!

I feel a tad overwhelmed but will keep handing out the information as I get it.

Also, received an email from Jeremy Wright yesterday from MS Research Australia. His response to my question about what the MSRA think of the BNAC results was; "I have spoken to our Research Chairman and while we will put up another comment early next week, it is not going to be drasticly different to 'we are watching these developments with interest'. There are further reports which will be more thorough, due for April & May, and we look forward to a more complete review of evidence." So regarding the formal research into CCSVI that seems to be where things are at in Australia.

Category:

People & Blogs

Tags:

• MS
• Multiple
• Sclerosis
• CCSVI
• Dr
• Zamboni
• Doppler
• jugular
• veins
• narrowing

[wisdaniel]

Wow, that is awesome news (in a weird way). That means you fit the mold of this new theory. I am happy for you. I excited for you!

[kezzcass]

@wisdaniel Hey this is old news now! I had the balloon angioplasty 7 weeks ago. Check my channel for latest vid :o)

[51amalia]

i am going tomorrow !!

see the doctor .. realy crazy to think that he can do it over night .. i am hopeing for somthing good .

amalia

[kezzcass]

That is excellent!!!!!!! Please let me know what the doc says! I have the procedure on Thursday this week - will post again on Friday. Kerri

[51amalia]

hi

my name is amalia and live in melbourne i hvae

had the scan and my right artery in my neck is blocked by 50% i am going to see a specialist on the 9 of march ...to discuusset with him

i am looking forward to that day

god luck for you

amalia

[kezzcass]

That is great that you are seeing a specialist. I hope you go well. Please let me know how you go. Kerri

[51amalia]

no sorry , the scne that i am going to do he is on my had . dopler i did befor .

amalia

[51amalia]

i am going to do the same in 3 weeks

having a colestrol test tomorrow . my doctor is going to the alfred to tolke to the doctor who did the operation on MS patient .

i geve him

all the articles printed . lookse very interesting !

i feel good aout him

good luck !

amalia

[51amalia]

hi Kerri

have you done the open artery yet ?

i hope you are well !

amalia

[51amalia]

who is this Doctor that can do it ???

i am going to see Dr Peter Blombery

on 42 The Avenue Winddsor he is the best , not saying that he is familiar with MS and CCSVI .. amalia

[51amalia]

i am very positive after visit my GP yesterday

i have 60 % blockeg ... my mum had 90 % on here right one . i will fight to do it !!!

amalia