I REFUSE...
Loading...
Uploaded by christiezink on Dec 23, 2011
Epidermolysis Bullosa, EB, is a devastating disease that affects 1 in 50,000 live births. The babies and children afflicted spend their lives suffering and fighting to survive. The slightest amount of friction, even the softest of touches can cause severe and excruciatingly painful blisters. There is no cure. Many of these children do not make it to their first birthday and if they do survive, there days are spent bandaged from head to toe, full of constant pain and suffering the many complications that come with EB.
I am dedicated to raising awareness and being a voice for these children because I refuse. I refuse to wait for someone else to do something that I myself can do. I cannot stand to watch another child suffer when I have the ability to help make a change. I refuse...do you? Please join us at https://www.facebook.com/pages/EB-Part-of-the-Cure/119730184796534 to learn more about these precious children and to find ways you can help to EB part of the cure.
4:07
Tripp Roth {2009-2012} ... a note to Godby Bellarose199414,583 views- 10:57
34 week premature babyby lamichurris58,284 views
- 4:35
Epidermolysis Bullosa -Mason Whiteby Laurentrent11113,634 views
- 2:49
Summit Upper Cervical Center FAQ - How Do You Adjust Babiesby SummitUpperCervical195 views
- 1:46
Pain pill addicted babiesby GoodSamaritanMedCtr204 views
- 4:08
High School Musical 3- Can I Have This Dance *Lyrics*by videogirl247592,662 views
- 1:15
Wilson's Diseaseby drkaruturi66,543 views
- 2:53
KST Chiropractic Adjustment for constipation in a newborn baby at Van Every in Royal Oakby vaneverychiropractic1,786 views
- 0:20
Vlinderkind - Ster TV spotby stichtingvlinderkind598 views
- 3:51
Bringin' up Baby: Soothing the Painby YorkUniversity468 views
- 9:11
Wilsons Disease - Amyby leeamyrussell7,323 views
- 1:56
Epidermolysis Bullosa (EB) Awareness video (extended)by PrincessSilvia86,336 views
- 0:57
Why Do Babies Cry?by geobeats72 views
- 3:36
End Epidermolysis Bullosa - Tripp Roth / EB Part of the Cureby christiezink16,893 views
- 3:02
Labor Positions | BabyCenter Videoby BabyCenterVideo1,251,063 views
- 2:22
Why screaming babies are helpfulby Jaysongaddis41 views
- 4:07
painby thekruelviking25 views
- 2:21
More Babies Hooked on Pain Killersby josephpleasantTV53 views
- 11:55
Full Review: iPhone 4Sby SoldierKnowsBest1,415,302 views
- 3:25
Vlinderkind - Wat is EB - Jesseby stichtingvlinderkind1,648 views
LOVE IT!
dementra79 1 week ago
AWE MY BABY DARREN! I LOVE THIS VIDEO!
krystalg89 1 week ago
Wonderful...who sings this song...God bless these children..
sherrylynn70 1 month ago in playlist Uploaded videos